How to Use the Advocacy Tool Watch this tutorial video to learn how to fill out the advocacy tool above to contact your members of Congress about| National Foundation for Ectodermal Dysplasias
In the United States, health plans systematically and routinely deny claims and appeals for medically-necessary procedures related to congenital abnormalities or birth defects. This practice leaves families the burden of how to pay for their child’s treatment or procedures that are required to repair function — and to help kids enjoy happier, healthier childhoods. About| National Foundation for Ectodermal Dysplasias -
April 4th was an extraordinary day for families affected by ectodermal dysplasias and congenital anomalies! You could almost hear the cries of victory and feel the joy of our advocates, families and staff who watched the live stream of the House of Representatives where they announced that ELSA had passed. Read about the exciting vote and what's next for the bill in the U.S. Senate.| National Foundation for Ectodermal Dysplasias -
