Telling your story is the most powerful way you can advocate for the Ensuring Lasting Smiles Act (ELSA). We know firsthand that many legislators who have co-sponsored ELSA did so because they were moved by a family’s story. Follow our tips to write and perfect your story.| National Foundation for Ectodermal Dysplasias
If you want to help improve the lives of people affected by congenital anomalies, including ectodermal dysplasias, become an advocate for the Ensuring| National Foundation for Ectodermal Dysplasias
We have provided some materials and resources to help you advocate and prepare for meetings with your legislators. Advocating for ELSA? Let everyone know!| National Foundation for Ectodermal Dysplasias
NFED Members Participate in Advocacy Days| National Foundation for Ectodermal Dysplasias
How to Use the Advocacy Tool Watch this tutorial video to learn how to fill out the advocacy tool above to contact your members of Congress about| National Foundation for Ectodermal Dysplasias
In the United States, health plans systematically and routinely deny claims and appeals for medically-necessary procedures related to congenital abnormalities or birth defects. This practice leaves families the burden of how to pay for their child’s treatment or procedures that are required to repair function — and to help kids enjoy happier, healthier childhoods. About| National Foundation for Ectodermal Dysplasias -
The Ensuring Lasting Smiles Act (ELSA) would require all private insurance group and individual health care plans to cover medically necessary services| National Foundation for Ectodermal Dysplasias
