Nobody expects their child to be born with a rare genetic disorder. It can be challenging, frustrating and overwhelming. The NFED exists to assure| National Foundation for Ectodermal Dysplasias
By Jill Radley I found the NFED in 1992, upon the recommendation of my childhood dentist at the University of Minnesota. When I received the literature| National Foundation for Ectodermal Dysplasias
By John A. Stith, M.D. , Professor, Pediatric Otolaryngology Saint Louis University School of Medicine, NFED Board of Directors and Patient Care Council I| National Foundation for Ectodermal Dysplasias
By Sarah Tevis Poteet, D.D.S., P.A. NFED Board of Director member since 2003 & Patient Care Council member I grew up as part of the NFED family as an| National Foundation for Ectodermal Dysplasias
By Lea Richardson What for you may ask? We are pleased to announce that the NFED has been approved as an official Certifying Organization for The| National Foundation for Ectodermal Dysplasias
The biggest complaint we hear from families in the United States who are affected by ectodermal dysplasias is that their health insurance company or their employer-sponsored self-insured health plan has denied benefits for necessary medical care and treatment regarding teeth. Our mission is to put an end to this by advocating to Congress. Ensuring Lasting| National Foundation for Ectodermal Dysplasias -
Did you know that you could volunteer and the National Foundation for Ectodermal Dysplasias could get paid for your hours? Many companies across the U.S. are starting volunteer grant programs. Learn what you need to do.| National Foundation for Ectodermal Dysplasias
