A Foundation Building Strength (AFBS) is absolutely thrilled to present our NM Awareness Month Recap and look back on a truly impactful May! For families and individuals touched by this rare neuromuscular disease, awareness is deeply personal – it’s about sharing our stories, speeding up research, and ultimately, building a path toward effective treatments. Our... The post NM Awareness Month Recap: Our Impactful May! appeared first on A Foundation Building Strength.| A Foundation Building Strength
Community Spotlights| A Foundation Building Strength
Meet Liv, a resilient 13-year-old in Los Angeles navigating Nemaline Myopathy (NM) through her teen years. Learn about her experiences, challenges, love for travel, and how she's involved in NM research and the Share-A-Thon.| A Foundation Building Strength
Meet Priscilla, a determined 9-year-old in Ohio living with severe Nemaline Myopathy (NM). Discover her inspiring resilience, love for learning, and how she's participating in the NM Awareness Share-A-Thon to support research.| A Foundation Building Strength
Meet Anthony, a graphic designer from the Netherlands living vibrantly with Nemaline Myopathy. Discover his inspiring story of independence, work, travel, and how he navigates life on his own terms. Support NM awareness!| A Foundation Building Strength
Meet Audrey, a resilient 6-year-old in Texas living with Nemaline Myopathy (NM). Learn about her life, challenges, and how she's participating in the NM Awareness Share-A-Thon to support research.| A Foundation Building Strength
Meet Tessa, a bright 3-year-old in Malta living with Nemaline Myopathy, a rare neuromuscular disease. Learn about her unique challenges as the only person with NM in Malta and how she's participating in the NM Awareness Share-A-Thon to support research.| A Foundation Building Strength
Join A Foundation Building Strength's first annual NM Awareness Share-A-Thon this May! Learn how you can easily spread awareness for Nemaline Myopathy and raise funds for vital research by sharing daily social media posts. Claim your fundraising page and make a difference with every share!| A Foundation Building Strength
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News| A Foundation Building Strength
Explore the latest advancements in NM therapies, including gene therapy, mouse models, and robotic garments. Discover promising research progress.| A Foundation Building Strength
Learn about the Nemaline Myopathy Biobank at Boston Children's Hospital and how you can participate in advancing NM research.| A Foundation Building Strength
News| A Foundation Building Strength