Incontinentia pigmenti (IP) is a disorder that affects the skin, hair, teeth, nails, eyes, and central nervous system; it occurs primarily in females and on occasion in males. Characteristic skin lesions evolve through four stages:| www.ncbi.nlm.nih.gov
We report here on the building-up of a database of information related to 386 cases of Incontinentia Pigmenti collected in a thirteen-year activity (2000-2013) at our centre of expertise. The database has been constructed on the basis of a continuous collection of patients (27.6/year), the majority …| PubMed
While a clinical diagnosis for ectodermal dysplasia is helpful in treating and understanding your condition, it’s also subjective. In many cases, genetic| National Foundation for Ectodermal Dysplasias
Lacy Light shares her family’s experience and hard won wisdom from their fight for their daughter's vision. This dedicated mom hopes to help other IP families with a new resource filled with tips and suggestions.| National Foundation for Ectodermal Dysplasias
Incontinentia pigmenti treatment is symptomatic and supportive. There is currently no cure for IP. For infants and children, parents should engage a team| National Foundation for Ectodermal Dysplasias
When characterizing IP, the only major criteria are four incontinentia pigmenti (IP) stages. Each stage is outlined below, but note that they can overlap.| National Foundation for Ectodermal Dysplasias
Eduardo shares his heart wrenching story to find help for his precious daughter, Arantxa. Born with incontinentia pigmenti in a country where doctors are not familiar with the condition, the sweet little girl faces extraordinary challenges. It's a story of a family fighting against all odds to save their baby and a father sharing his emotional journey.| National Foundation for Ectodermal Dysplasias
