Noelle Nuñez and her son Ezmile rewrite the narrative of Nemaline Myopathy (NM). A story of resilience, adaptation, and a mother-son bond that thrives despite challenges.| A Foundation Building Strength
Faces of NM: Meet Mila Giselle Davila, a 5-year-old battling Nemaline Myopathy (NM). Despite her challenges, Mila's spirit shines through. Read her story of courage, resilience, and hope.| A Foundation Building Strength
Nicole Riedie, a marketing professional with Nemaline Myopathy (NM), shares her inspiring journey of overcoming challenges and living a fulfilling life. This is a story of resilience, hope, and achieving dreams despite limitations. Learn more about Nemaline Myopathy.| A Foundation Building Strength
Follow Harneet Sandhu's journey navigating Nemaline Myopathy. Learn about her symptoms, challenges, and advocacy in this inspiring account.| A Foundation Building Strength
Alexandra Gresick, a 35-year-old living with Nemaline Myopathy (NM), shares her journey, challenges, and unwavering spirit. Learn how she thrives despite a rare disease and find resources for support.| A Foundation Building Strength
Enilton Neymakes Morais, a world traveler with Nemaline Myopathy, shares his inspiring story of resilience, language learning, and dreams of global exploration.| A Foundation Building Strength
Community Spotlights| A Foundation Building Strength
Meet Liv, a resilient 13-year-old in Los Angeles navigating Nemaline Myopathy (NM) through her teen years. Learn about her experiences, challenges, love for travel, and how she's involved in NM research and the Share-A-Thon.| A Foundation Building Strength
Meet Priscilla, a determined 9-year-old in Ohio living with severe Nemaline Myopathy (NM). Discover her inspiring resilience, love for learning, and how she's participating in the NM Awareness Share-A-Thon to support research.| A Foundation Building Strength
Meet Anthony, a graphic designer from the Netherlands living vibrantly with Nemaline Myopathy. Discover his inspiring story of independence, work, travel, and how he navigates life on his own terms. Support NM awareness!| A Foundation Building Strength
Meet Audrey, a resilient 6-year-old in Texas living with Nemaline Myopathy (NM). Learn about her life, challenges, and how she's participating in the NM Awareness Share-A-Thon to support research.| A Foundation Building Strength
Meet Tessa, a bright 3-year-old in Malta living with Nemaline Myopathy, a rare neuromuscular disease. Learn about her unique challenges as the only person with NM in Malta and how she's participating in the NM Awareness Share-A-Thon to support research.| A Foundation Building Strength