Congenital Central Hypoventilation syndrome (CCHS) is a condition affecting how the autonomic nervous system manages breathing. This page from Great Ormond Street Hospital (GOSH) explains the causes, symptoms and treatment of congenital central hypoventil| GOSH Hospital site
Find out what activities we run at the hospice for children, siblings and the rest of the family. Most people think of a hospice as a sad place, but we make sure there's lots of fun and laughter to go round!| Chestnut Tree House
Mikey was just nine-months old when he was fitted with a tracheostomy to help him breathe. His condition is so complex that he needs to be watched and monitored all day and all night. For his mum Chevonne, that often means 24 hours without any sleep. For families like Mikey’s, Chestnut Tree House is a lifeline.| Chestnut Tree House
Meet one of our amazing families who are living with epilepsy and Cardiofaciocutaneous Syndrome. Gracie and Mum Aly share their story about how the children's hospice- Chestnut Tree House - helps them cope day to day.| Chestnut Tree House
Archie was born with half a heart. And at the tender age of six he's already had multiple surgeries to help his condition, including open heart surgery. Archie's Dad, Ed, tells us about the realities of having a child with a life-limiting illness, and what Chestnut Tree House, Children's hospice means to them.| Chestnut Tree House