Maarten and Linus were the first two boys treated before they were born with an investigational medicine for X-linked hypohidrotic ectodermal dysplasia. The boys are now 7 years old. The long-term results are incredibly positive! Read how they and the four other boys who were treated are doing.| National Foundation for Ectodermal Dysplasias
Synonyms Anhidrotic ectodermal dysplasia Christ-Siemens-Touraine syndrome Forms X-linked hypohidrotic ectodermal dysplasia (XLHED) Autosomal recessive| National Foundation for Ectodermal Dysplasias
The EspeRare Foundation and Pierre Fabre Medicament seek to develop the first treatment for x-linked hypohidrotic ectodermal dysplasia (XLHED). They are| National Foundation for Ectodermal Dysplasias
Why I Volunteered to Participate in the Edimer Research Trials| National Foundation for Ectodermal Dysplasias
