When you’re dealing with a challenging health situation, it can be hard. Hard because of what you are dealing with, and hard because you need to navigate getting and seeking care. That typically looks like going to a doctor, getting the doctor to understand the problem, and then finding solutions to deal with the problem.…| DIYPS.org
I used to make a lot of statements about things I thought I couldn’t do. I thought I couldn’t run overnight, so I couldn’t attempt to run 100 miles. I could never run 200 mile races the way other people did. Etc. Yet last year I found myself training for and attempting 100 miles (I…| DIYPS.org
I have a new thing, and I didn’t want to talk about it. In part, because of stigma. Mostly, because of stigma. Stigma has played a huge role in how I have responded to my own chronic autoimmune diseases for almost 20 years, in fact. I’m incredibly disappointed that not much has changed in all…| DIYPS.org
Sometime in the last year, I decided I wanted to run 100 miles. In part, because I wanted to tackle the complex challenge and problem-solving that is even figuring out how to do it. My situation as an ultrarunner is slightly atypical: I have type 1 diabetes and need to closely manage insulin levels and…| DIYPS.org
This post was written months ago for Prescribe Design, and will also be posted/made available there as a collection of their stories by and about patients who design, but I am also posting here for anyone new to #DIYPS and/or wondering about how #OpenAPS came into existence. -- About the author: Dana Lewis is the…| DIYPS.org
The canary in the coal mine was my swollen eyelids. No one (including my providers) seemed to care over the last 3 or so years, but all along, I knew it was a matter of time before my body decided to speak up even more loudly and tell me what else was wrong and what…| DIYPS.org