Advocacy Day on Capitol Hill 2025 - NFED
Register Today! Sponsor Day on Capitol Hill We are thrilled to return to Capitol Hill for an in-person Advocacy Day in 2025 to champion the Ensuring| National Foundation for Ectodermal Dysplasias
Register Today! Sponsor Day on Capitol Hill We are thrilled to return to Capitol Hill for an in-person Advocacy Day in 2025 to champion the Ensuring| National Foundation for Ectodermal Dysplasias
Ectodermal dysplasias are a diverse group of genetic disorders that involve defects of the hair, nails, teeth, skin and glands. Other parts of the body,| National Foundation for Ectodermal Dysplasias
In the United States, health plans systematically and routinely deny claims and appeals for medically-necessary procedures related to congenital abnormalities or birth defects. This practice leaves families the burden of how to pay for their child’s treatment or procedures that are required to repair function — and to help kids enjoy happier, healthier childhoods. About| National Foundation for Ectodermal Dysplasias -
The biggest complaint we hear from families in the United States who are affected by ectodermal dysplasias is that their health insurance company or their employer-sponsored self-insured health plan has denied benefits for necessary medical care and treatment regarding teeth. Our mission is to put an end to this by advocating to Congress. Ensuring Lasting| National Foundation for Ectodermal Dysplasias -
Our Staff Mary is our fearless leader who brings two decades of nursing and case management experience and her passion to make a difference. She oversees| National Foundation for Ectodermal Dysplasias
The NFED is Growing!| National Foundation for Ectodermal Dysplasias
