Columnist Jacqueline Babiarz's body continues to recover from the physical toll of caregiving two years after her daughter passed away.| Rett Syndrome News
Grief is complicated. There’s no playbook, but I wish there were. I try to prepare myself for events that I know will evoke grief, but I can’t stop it from bubbling up. My oldest daughter, Cammy, passed away in December 2023 at the age of 14 from complications of Rett syndrome. She had only been in […] The post A pink homecoming dress keeps sisters connected appeared first on Rett Syndrome News.| Rett Syndrome News – The Web's Daily Resource for Rett Syndrome News
Most people from my parents’ generation remember where they were when President John F. Kennedy was assassinated in 1963. Sept. 11, 2001, was my generation’s “Where were you when …?” I was driving to an 8 a.m. class when I heard on the radio that a plane had crashed into the World Trade Center. Classes […] The post In events of mass violence, who protects people with disabilities? appeared first on Rett Syndrome News.| Rett Syndrome News – The Web's Daily Resource for Rett Syndrome News