Meet Kristin Matus-Kelso, our new Family and Community Programs Coordinator! With 20 years of personal experience in the ectodermal dysplasia community, Kristin is no stranger to the NFED.| National Foundation for Ectodermal Dysplasias
The National Foundation for Ectodermal Dysplasias (NFED) has been collaborating for over a year with The Aspen Group to create a charitable referral connection for families. We are pleased to announce the formal launch of the Smile Bridge program to provide 15 identified patients free clinical dental care, to include implants, up to their age of 22.| National Foundation for Ectodermal Dysplasias
By John A. Stith, M.D. , Professor, Pediatric Otolaryngology Saint Louis University School of Medicine, NFED Board of Directors and Patient Care Council I| National Foundation for Ectodermal Dysplasias
By Lea Richardson What for you may ask? We are pleased to announce that the NFED has been approved as an official Certifying Organization for The| National Foundation for Ectodermal Dysplasias
A nonprofit dedicated to one type of ectodermal dysplasia has closed its doors. We are honored to have worked with its founder to transfer their information and welcome their families. Explore our new, expanded section on incontinentia pigmenti.| National Foundation for Ectodermal Dysplasias
We are thrilled to announce that Greg Klimovitz has joined the National Foundation for Ectodermal Dysplasias (NFED) as our new Director of Development and Communications. With 20 years of experience in community development and executive leadership within nonprofit, interfaith and religious organizations, social enterprises, and youth programs, Greg brings a wealth of knowledge and a fresh perspective to our team.| National Foundation for Ectodermal Dysplasias