When Nishant joined NFED as a new Advocacy State Lead, he never expected to find his former English teacher, Jonathan, leading alongside him. Now, the two are working together to advocate for the Ensuring Lasting Smiles Act and show how powerful community and connection can be.| National Foundation for Ectodermal Dysplasias
Meet Kristin Matus-Kelso, our new Family and Community Programs Coordinator! With 20 years of personal experience in the ectodermal dysplasia community, Kristin is no stranger to the NFED.| National Foundation for Ectodermal Dysplasias
A nonprofit dedicated to one type of ectodermal dysplasia has closed its doors. We are honored to have worked with its founder to transfer their information and welcome their families. Explore our new, expanded section on incontinentia pigmenti.| National Foundation for Ectodermal Dysplasias
We are thrilled to announce that Greg Klimovitz has joined the National Foundation for Ectodermal Dysplasias (NFED) as our new Director of Development and Communications. With 20 years of experience in community development and executive leadership within nonprofit, interfaith and religious organizations, social enterprises, and youth programs, Greg brings a wealth of knowledge and a fresh perspective to our team.| National Foundation for Ectodermal Dysplasias
