Meet Dr. Beau Meyer, a passionate pediatric dentist making a real difference for kids with ectodermal dysplasias! His dedication, creativity, and heart for his patients shine through in everything he does. Want to hear how he’s changing lives—and maybe even get inspired yourself? Don’t miss this volunteer spotlight!| National Foundation for Ectodermal Dysplasias
The National Foundation for Ectodermal Dysplasias (NFED) is thrilled to announce the addition of new leadership experts. Joining our Board of Directors, Patient Care Council, and Scientific Advisory Council, these four exceptional leaders will bring knowledge, experience and insights to advance the foundation's mission of supporting and serving individuals and families affected by ectodermal dysplasias.| National Foundation for Ectodermal Dysplasias
Long time National Foundation for Ectodermal Dysplasias (NFED) volunteer and pediatric dermatologist Dr. Elaine Siegfried said that mentoring the next| National Foundation for Ectodermal Dysplasias
What began as one mother’s determination to raise awareness for her son’s rare condition has now grown into a beloved community event. This year marks the final Sweat It Out 5K fundraiser for the NFED, and we're celebrating Jamie and her family's dedication to raising awareness for their son, Nicholas, who was born with XLHED.| National Foundation for Ectodermal Dysplasias
NFED Members Participate in Advocacy Days| National Foundation for Ectodermal Dysplasias
Pediatric dermatologists are hard to find. Fortunately, the NFED has had an excellent one on our team in Dr. Elaine Siegfried. Read how about the impact she's made and why she thinks the NFED is different than other organizations.| National Foundation for Ectodermal Dysplasias
Did you know that you could volunteer and the National Foundation for Ectodermal Dysplasias could get paid for your hours? Many companies across the U.S. are starting volunteer grant programs. Learn what you need to do.| National Foundation for Ectodermal Dysplasias
Volunteer Spotlight: Our Folders, Stuffers and Filers Oh My| National Foundation for Ectodermal Dysplasias
Meet Shirley Parraga of the Wake Forest School of Medicine, Department of Dermatology and research assistant to Dr. Maranke Koster. Shirley’s journey with the National Foundation for Ectodermal Dysplasias (NFED) exemplifies a deep commitment to advancing research and providing hope for families affected by rare skin diseases.| National Foundation for Ectodermal Dysplasias
