Discover how a chance encounter with a young patient set Dr. Clark Stanford on a lifelong mission with the NFED. For more than two decades, Dr. Clark Stanford has combined skill, compassion, and heart to transform lives of families affected by ectodermal dysplasias. He’s the NFED’s Scientific Advisory Council chairman whose journey shows the powerful impact of care rooted in empathy. Read his story.| National Foundation for Ectodermal Dysplasias
When Nishant joined NFED as a new Advocacy State Lead, he never expected to find his former English teacher, Jonathan, leading alongside him. Now, the two are working together to advocate for the Ensuring Lasting Smiles Act and show how powerful community and connection can be.| National Foundation for Ectodermal Dysplasias
The National Foundation for Ectodermal Dysplasias (NFED) is thrilled to announce the addition of new leadership experts. Joining our Board of Directors, Patient Care Council, and Scientific Advisory Council, these four exceptional leaders will bring knowledge, experience and insights to advance the foundation's mission of supporting and serving individuals and families affected by ectodermal dysplasias.| National Foundation for Ectodermal Dysplasias
Dr. Schneider and his team of investigators have published their groundbreaking research results in a “Prenatal Correction of X-Linked Hypohidrotic Ectodermal Dysplasia.” We are thrilled to share with you key highlights from their research, what it means for our families affected by XLHED, and the next steps.| National Foundation for Ectodermal Dysplasias
It may seem like the Ensuring Lasting Smiles Act (ELSA) has stalled in the 118th Congress. However, we are taking a different approach. Find out what's happening with this critical legislation and what you can do to help.| National Foundation for Ectodermal Dysplasias
