If your baby is affected by Goltz syndrome, you’re not alone. Our new guide shares what to expect in the first year, practical tips for care, and stories from families who’ve been there. The NFED is here to support, comfort, and connect you every step of the way.| National Foundation for Ectodermal Dysplasias
Long time National Foundation for Ectodermal Dysplasias (NFED) volunteer and pediatric dermatologist Dr. Elaine Siegfried said that mentoring the next| National Foundation for Ectodermal Dysplasias
Our Staff Mary is our fearless leader who brings two decades of nursing and case management experience and her passion to make a difference. She oversees| National Foundation for Ectodermal Dysplasias
Volunteer Spotlight: Our Folders, Stuffers and Filers Oh My| National Foundation for Ectodermal Dysplasias