Meet Colt, a little boy in Texas with a big smile. He’s the fourth generation in his family to be affected by x-linked hypohidrotic ectodermal dysplasia. From not sweating in the Texas heat to wearing custom-made dentures, his journey is filled with daily challenges. Read how the dentures have changed Colt’s life and how his mom is leading “Team Colt.”| National Foundation for Ectodermal Dysplasias
Maddie’s journey with ectodermal dysplasia took a transformative turn when she expressed a desire to change her smile. With guidance from the NFED and a dedicated team of specialists, she found a path that preserved her teeth while boosting her confidence. Read her inspiring story of resilience and expert care.| National Foundation for Ectodermal Dysplasias
This is one person’s journey from growing up in Western Africa with ectodermal dysplasia to finally getting dental implants in the U.S. It’s about the challenges of treatment, the financial and insurance battles, and why we need laws to ensure everyone gets medically necessary dental care.| National Foundation for Ectodermal Dysplasias
When Nishant joined NFED as a new Advocacy State Lead, he never expected to find his former English teacher, Jonathan, leading alongside him. Now, the two are working together to advocate for the Ensuring Lasting Smiles Act and show how powerful community and connection can be.| National Foundation for Ectodermal Dysplasias
Long time National Foundation for Ectodermal Dysplasias (NFED) volunteer and pediatric dermatologist Dr. Elaine Siegfried said that mentoring the next| National Foundation for Ectodermal Dysplasias
