The 2023 TCS NYC Marathon was more than just a race; it was a powerful demonstration of collective strength, determination, and unwavering support for those affected by Nemaline Myopathy (NM), a rare congenital muscle disease. A Foundation Building Strength (AFBS) spearheaded a team of remarkable individuals who not only laced up their running shoes but also rallied communities and hearts to raise funds for NM research.| A Foundation Building Strength
May is Nemaline Myopathy Awareness Month! Join the AFBS community for events, giveaways, educational resources, and more throughout the month, culminating in Nemaline Myopathy Awareness Day on May 31st.| A Foundation Building Strength
A Foundation Building Strength (AFBS) is excited to support smaller, regional gatherings for NM families to stay connected around the world. In 2023, there are currently gatherings being planned in the following locations: Palo Alto, California São Paulo, Brazil (virtual, in Portugese) Kungsbacka, Sweden (in Swedish) Charlotte, North Carolina New York City, New York Are you...| A Foundation Building Strength
At A Foundation Building Strength, we are committed to making a positive impact in the lives of individuals and families affected by Nemaline Myopathy (NM), a rare muscle disorder causing muscle weakness. This summer, we’ve had the incredible opportunity to bring NM families together through a series of Regional Gatherings. These events not only provided...| A Foundation Building Strength
Join A Foundation Building Strength's first annual NM Awareness Share-A-Thon this May! Learn how you can easily spread awareness for Nemaline Myopathy and raise funds for vital research by sharing daily social media posts. Claim your fundraising page and make a difference with every share!| A Foundation Building Strength
Events| A Foundation Building Strength
Our blog shares the latest in Nemaline Myopathy research, celebrates members of our community, features special events and important news.| A Foundation Building Strength
News| A Foundation Building Strength
AFBS gathered with members of the NM Community to cheer on Team AFBS runners as they tackled the 2024 New York City Marathon!| A Foundation Building Strength
AFBS launched its "Building Strength Together" webinar series, providing emotional wellness support and connection to the NM community. Learn about the insightful conversations and how to get involved!| A Foundation Building Strength