Living immune-compromised in a world that ignores personal space
As an immune-compromised NMOSD patient, columnist Jennifer V. wishes others would remember the lessons of the pandemic.| Neuromyelitis News
As an immune-compromised NMOSD patient, columnist Jennifer V. wishes others would remember the lessons of the pandemic.| Neuromyelitis News
Since her NMOSD diagnosis, columnist Jennifer V. has found routines crucial for distinguishing between bad days and signs of a flare-up.| Neuromyelitis News
Regular rituximab treatment in neuromyelitis optica spectrum disorder resulted in less disability and fewer relapses, per a real word study.| Neuromyelitis News
Columnist Jennifer V. says she's learned a valuable lesson about coping with chronic illness by leaning into advocacy, rest, and community.| Neuromyelitis News
Higher levels of the signaling molecule CXCL13 detected in the blood and CSF fluid of NMOSD patients were accompanied by worse disability.| Neuromyelitis News
Even though it's hard, columnist Jennifer V. hopes to be patient enough to outlast current health and professional struggles.| Neuromyelitis News
As columnist Jennifer van Amerom celebrates her daughter's 10th birthday, she reflects on the risks and challenges of NMO and pregnancy.| Neuromyelitis News
For columnist Jennifer V., telehealth appointments have made care more accessible, but some things just can't be done virtually, she says.| Neuromyelitis News
Rituximab and mycophenolate mofetil may offer the most effective off-label alternatives for NMOSD patients, according to a study.| Neuromyelitis News
Columnist Jennifer V. gives thanks for the support and encouragement of her readers, who remind her of the power of the NMOSD community.| Neuromyelitis News
Stressors drain energy that's already limited by NMOSD, says columnist Jennifer V., who shares how she's surviving the storms of life.| Neuromyelitis News
A recent increase in her NMOSD pain prompts columnist Jennifer V. to try acupuncture again, for the first time since her diagnosis.| Neuromyelitis News
Columnist Jennifer V. explains what "bed rotting" is and how it can be useful for NMOSD patients who need rest and recovery to avoid flares.| Neuromyelitis News
