Lisa McCorkell, one of the founders of the Patient-Led Research Collaborative (or PLRC), recently stepped down after five years co-leading the organization. The Sick Times co-founder and managing editor Betsy Ladyzhets spoke with McCorkell in an exit interview. She reflected on her time collaborating on formative Long COVID studies, advocating for federal funding, developing new patient-led initiatives, and more.| The Sick Times - Chronicling the Long Covid crisis
Now it’s been four years. And this thing — this invisible thing — is still here. Every morning is a gamble. Will I wake up with energy? Or will my legs feel like stone? Will I be able to focus? Or will my thoughts float around like lint in the air, impossible to catch?| The Sick Times - Chronicling the Long Covid crisis
I’m pretty good at managing my POTS after four years, but sometimes it still gets me.| theheatherhogan.substack.com
"I don't want you to see me fall," I said. "I want you to think I'm cool."| theheatherhogan.substack.com
The last thing I thought before I smashed, face first, into the New York City sidewalk, was, Dang, my wife's going to want me to start taking my cane with me everywhere I go. But mostly, I was worried one of my neighbors would watch me tumble over and go limp.| The Sick Times - Chronicling the Long Covid crisis