Lacy Light shares her family’s experience and hard won wisdom from their fight for their daughter's vision. This dedicated mom hopes to help other IP families with a new resource filled with tips and suggestions.| National Foundation for Ectodermal Dysplasias
Incontinentia pigmenti treatment is symptomatic and supportive. There is currently no cure for IP. For infants and children, parents should engage a team| National Foundation for Ectodermal Dysplasias
SYNONYMS Bloch-Sulzberger syndrome Bloch-Siemens incontinentia pigmenti Pigmented dermatosis Siemens-Bloch type Incontinentia pigmenti (IP) is an X-linked| National Foundation for Ectodermal Dysplasias
A nonprofit dedicated to one type of ectodermal dysplasia has closed its doors. We are honored to have worked with its founder to transfer their information and welcome their families. Explore our new, expanded section on incontinentia pigmenti.| National Foundation for Ectodermal Dysplasias
