Around the world, individuals, organisations and communities are coming together in to mark World ME Day 2025. Below is a breakdown of national events and campaigns happening by country, highlighting the wide range of efforts to raise awareness, push for better care, and demand action for people living with Myalgic Encephalomyelitis (ME). From media takeovers […] The post Country-by-Country Highlights for World ME Day 2025 appeared first on World ME Alliance.| World ME Alliance
This World ME Day, on May 12th, communities around the globe are coming together to raise awareness, demand change, and support people living with Myalgic Encephalomyelitis (ME). From international conferences and grassroots activism to creative awareness-raising campaigns and vital educational tools, here’s a roundup of just some of what’s happening around the world this year. […] The post Marking World ME Day: A Round-Up of Global Events and Tools appeared first on World ME Alliance.| World ME Alliance
Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is a debilitating illness that affects millions of people worldwide. However, persistent myths and misunderstandings hinder its recognition and treatment. Below, we debunk six of the most common myths about ME and share the medical facts everyone should know. Read on and share these graphics […] The post World ME Day 2025: Six Myths and Facts Everyone Should Know About Myalgic Encephalomyelitis (ME) appeared fir...| World ME Alliance
On May 10th we’ll joining with advocates across the world to showcase the committed work of non-profit organisations, all building a #GlobalVoiceForME. Find out who is speaking and the range of topics they are covering! Speakers Mlindeni Gabela and Sam Pearce MELCuSA South Africa Reporting on the world’s first SICK Pride event Giada Da Ros […]| World ME Alliance
Name: Priscilla FalcãoPronouns: she/herAge: 46Home: Salvador, BrazilSick for: 7 years I’ve always had a very fragile immune system, so my illness is probably post-viral. I feel like I only have 10-20% of the energy capacity I had before I got sick. If doctors were trained to deal with ME/CFS, I could certainly have a much […]| World ME Alliance
Name: MaxPronouns: he/himAge: 36Home: Lviv, UkraineSick for: 18 years Back in 2006 I was a perfectly healthy, vibrant 2nd year University student studying molecular physics in Kyiv, Ukraine. I caught pneumonia and first thought nothing of it, but later had to spend 2 weeks in hospital to recover. I was discharged, yet I felt something […]| World ME Alliance
Name: Una Alexia KarlsenPronouns: she/herAge: 42Home: Cape Town, South AfricaSick for: 20 years (Content warning: medically assisted dying) In 2020, during the Cape Town Pride parade, I collapsed, just half a block from the start. If I tried to stand up I would become dizzy, my heart rate would shoot way up, and I’d fall […]| World ME Alliance
Name: Dr Muhammad ShafiqAge: 62.5Pronouns: he/himHome: Lahore, PakistanSick for: about 50 years I was born in a small town in Pakistan. I think my illness was triggered by influenza and compounded by adverse childhood experiences. I managed to complete my medical studies when I was mild to moderately affected (at 60-70% capacity) and struggled through […]| World ME Alliance