Fred has been developmentally disabled since birth. He was non-verbal and came to our hospital with a bowel obstruction due to Pica. He lived in a long-term nursing home known to have a less-than-desirable reputation, but it was one of the few places that took Medicaid patients in our area. Upon admission, we learned that the facility was now being closed due to multiple violations. | CMSA
As someone living with pulmonary hypertension (PH), I am dedicated to advocating for the needs of the rare disease community. My advocacy efforts span various platforms: patients, healthcare professionals, and the broader public. My work includes continuing my education and collecting resources for everyone in the rare disease community. Some of it is conducted through […] The post A PH advocate finds hope in new research, anxiety at the airport appeared first on Pulmonary Hypertension News.| Pulmonary Hypertension News – The Web's Daily Resource for PH News
From telehealth to time change to reimbursement, the AASM Advocacy Committee is shaping policy to ensure sleep medicine remains accessible, science-driven, and central to public health.| Sleep Review
A patient advocate realizes that perfect can become the enemy of good care for OSA patients who fail or refuse CPAP.| Sleep Review
For Immediate Release WASHINGTON, D.C. – March 12, 2025 – On March 18th, over 250 advocates... Read More The post Headache on the Hill 2025 to Bring Over 250 Advocates to Capitol Hill to Demand Action for Headache Disorders appeared first on AHDA.| AHDA
The stories of our advocates are the driving force behind what we do. We know that... Read More The post Headache on the Hill Patient Advocate Spotlights: New Daily Persistent Headache appeared first on AHDA.| AHDA
Narcolepsy Network is delighted to announce its 38th Annual Conference, taking place Friday, October 24 through Sunday, October 26, 2025, at the Royal Sonesta Minneapolis Downtown. For nearly 40 years, Narcolepsy Network’s Annual Conference has been the premier event for people living with narcolepsy or idiopathic hypersomnia (IH) and their supporters. The program is thoughtfully [...] The post Narcolepsy Network Announces its 38th Annual Conference appeared first on Sleep Education.| Sleep Education
Join Wake Up Narcolepsy for an insightful event that will foster collaboration and share professional and lived experiences.| Sleep Education
Breast cancer treatment isn’t one-size-fits-all. Personalized care is tailored to you. Learn more about tailored plans and treatment.| Susan G. Komen®
The outlook for the Huntington's community has never been brighter, Louise Vetter, president and CEO of the HDSA, said at the organization's annual convention.| Huntington's Disease News
