Imagine going 37 years without knowing why you faced so many health struggles. That was Lindsey’s life until she finally got answers. In this blog, she shares her journey from silence to strength, how she found community, and why she’s determined to advocate for her kids.| National Foundation for Ectodermal Dysplasias
Acting as doctors within borders, the Thompsons are at the forefront of the health care crisis in the United States, helping the walking wounded who arrive on their doorstep. The post The ‘unapologetically Catholic’ couple bringing prayer and health care to Texas’s uninsured appeared first on America Magazine.| America Magazine
This is one person’s journey from growing up in Western Africa with ectodermal dysplasia to finally getting dental implants in the U.S. It’s about the challenges of treatment, the financial and insurance battles, and why we need laws to ensure everyone gets medically necessary dental care.| National Foundation for Ectodermal Dysplasias
It's March Madness! Think playing college basketball is tough? Try doing it without sweat glands! Jacobi doesn’t just play—he’s excelling, despite having XLHED. From figuring out how to regulate his body temperature to throwing down jaw-dropping dunks, his journey is nothing short of inspiring. Learn what he has to say to the next generation of athletes with XLHED.| National Foundation for Ectodermal Dysplasias
Brooklynn’s journey with ectodermal dysplasia led to a life-changing smile transformation. Read how her new crowns boosted her confidence and function, and how her parents navigated challenges to give her the best care possible. This inspiring story is one of resilience, advocacy, and the power of a radiant smile.| National Foundation for Ectodermal Dysplasias
I'm not alone I see it every day. In July of 2021, PJ Smith walked through the doors of Base Camp. She was struggling with financial stress after a car...| Lighthouse Mission - Bellingham, WA Homeless Shelter
