I’ve changed my Lyrica dosing schedule to take it all in the evening, which has helped a little with my fatigue but I’m still just so very tired throughout the day and can barely get anything done.| busybee
I’ve been struggling with my fibromyalgia + chronic fatigue lately. So hard for me to do any of the things I want to do. I can push myself into it for something especially compelling but that ends up wiping me out for days afterward. And I feel like I’m missing so much time, too.| busybee
Let’s not sugarcoat it: Labour has a disability problem, and the way they’ve handled the so-called “welfare reform” bill proves it. Despite over nine months of relentless work by charities, disability organisations, and disabled people themselves, educating MPs, sharing lived experience, and offering real solutions, the bill passed through Parliament with barely a nod to ... Read more The post Labour’s Disability Problem: Cuts, Silencing, and Systemic Bias first appeared on ME Foggy...| ME Foggy Dog
A shadow is looming over the disabled community: the potential return of widespread, mandatory face-to-face assessments for the Personal Independence Payment (PIP). While the world has tentatively embraced a “new normal” post-pandemic, for many disabled people, a key accessibility measure introduced during the crisis is under threat. The push by some MPs to reinstate in-person ... Read more The post The Fight for Fairer Assessments: Why Remote PIP Reviews Must Remain first appeared on ME ...| ME Foggy Dog
(Time to read: 17minutes)It is no secret that I am disabled. I may not advertise it, but I have talked openly about my struggles with chronic fatigue since the day it started with everyone close to me and anyone who asks. Surprisingly, I didn’t gain any weight since then, I maintained the same weight that I had been… Read More »The Quest to Not Die As Fast| Kit Does Things
Hi, Due to my own M.E. and other personal issues this week, I have just resorted to asking AI how disabled people in Scotland will be impacted by the proposed welfare cuts by the Government in Westminster. I had previously seen people who live in Scotland saying they won’t be impacted so I was surprised ... Read more The post Impact of Liz Kendall’s Proposed Welfare Cuts in Scotland first appeared on ME Foggy Dog.| ME Foggy Dog
Happy Juneteenth from all of us here at #MEAction! Juneteenth commemorates June 19th, 1865 when slavery of African-Americans was officially enforced. To celebrate we have put together a summer reading list of books by disabled Black authors. Keah Brown is an American author who was born with cerebral palsy. She created the popular hashtag #disabledandcute … Happy Juneteenth + Black Disabled Authors Reading List Read More »| #MEAction Network
I only just learned from eladnarra’s blog that May is ME/CFS awareness month, which I guess is fitting given that throughout all of May I’ve been getting painfully aware that I may have been developing it on top of everything else.| beesbuzz.biz
Hi everyone, I thought I’d give you an update on how things are going in the tortured poets department. Stepping away from Substack -was it a good idea? You may remember I took the decision last mo…| Kathryn Anna Marshall
This was originally meant to be a Facebook/Instagram post for ME/CFS and Fibromyalgia Awareness Day. But it was too long XD So here’s the full post. Check out my author Facebook or Instagram for the TL;DR versions. Right now, I’m going through one of the worst fatigue flare ups I’ve had since my ME/CFS and […]| Kristina Adams