I had waited 16 years to hear one of my favorite bands of all time perform, as their catalog of music was the soundtrack to my youth. That’s how long Oasis, one of the most iconic bands of the 1990s and early 2000s, had been absent from North America — and, before this reunion tour, […] The post An Oasis concert made hope feel possible again appeared first on Neuromyelitis News.| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
As an immune-compromised NMOSD patient, columnist Jennifer V. wishes others would remember the lessons of the pandemic.| Neuromyelitis News
As wildfires rage across Ontario, Canada, and neighboring provinces, the skies over Toronto have turned hazy and the air has become a silent threat. For most, this means itchy eyes and a scratchy throat. But for those of us living with neuromyelitis optica spectrum disorder (NMOSD), the consequences run deeper, into the very nerves that […] The post How the Ontario wildfires threaten my health, given my NMOSD appeared first on Neuromyelitis News.| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
Some days I feel like I’m made of symptoms. Living with neuromyelitis optica spectrum disorder (NMOSD) means navigating a body that’s constantly shifting beneath me, unpredictable in ways that defy preparation. Speaking of symptoms: One moment, my spine burns with relentless pain. The next day I’m ravenous, only to be hit with nausea before I […] The post When eye shadow and fingernail polish are types of treatment appeared first on Neuromyelitis News.| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
It’s been some time since my last neuromyelitis optica spectrum disorder (NMOSD) attack, and lately, I’ve started to realize just how traumatic the previous year was for me. I recognize that I’m holding in this trauma and still fear another attack, and it’s adversely affecting my life. With more time to myself lately, I’ve gained […] The post How I’m processing ongoing trauma by creating space for myself appeared first on Neuromyelitis News.| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
Since her NMOSD diagnosis, columnist Jennifer V. has found routines crucial for distinguishing between bad days and signs of a flare-up.| Neuromyelitis News
Columnist Jennifer V. says she's learned a valuable lesson about coping with chronic illness by leaning into advocacy, rest, and community.| Neuromyelitis News
Even though it's hard, columnist Jennifer V. hopes to be patient enough to outlast current health and professional struggles.| Neuromyelitis News
For columnist Jennifer V., telehealth appointments have made care more accessible, but some things just can't be done virtually, she says.| Neuromyelitis News
Stressors drain energy that's already limited by NMOSD, says columnist Jennifer V., who shares how she's surviving the storms of life.| Neuromyelitis News
A recent increase in her NMOSD pain prompts columnist Jennifer V. to try acupuncture again, for the first time since her diagnosis.| Neuromyelitis News
Columnist Jennifer V. explains what "bed rotting" is and how it can be useful for NMOSD patients who need rest and recovery to avoid flares.| Neuromyelitis News
What others may see as mood swings, columnist Jennifer van Amerom argues, are often reactions to trauma or treatment.| Neuromyelitis News
With optic neuritis symptoms lingering despite treatment, columnist Jennifer van Amerom is trying to listen to what her body tells her.| Neuromyelitis News
After a series of plasma exchange sessions, columnist Jennifer van Amerom is hoping her vision fully returns to normal.| Neuromyelitis News
Career changes, new home hunts, and symptom flares are a lot to handle, says columnist Jennifer van Amerom, who's juggling life and NMOSD.| Neuromyelitis News