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From:
National Foundation for Ectodermal Dysplasias
(Uncensored)
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Missing Proteins May Contribute to Skin Fragility in AEC Syndrome - NFED
https://nfed.org/blog/missing-proteins-may-contribute-to-skin-fragility-in-aec-syndro/
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What causes skin or corneal erosions in AEC or EEC syndrome? The NFED has been collaborating with Dr. Maranke Koster and her research lab to find that answer and ultimately develop new treatments. Read the latest update and what they are learning!
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