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From:
National Foundation for Ectodermal Dysplasias
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Advocacy 101: Make Your Story Known For ELSA - NFED
https://nfed.org/blog/make-your-story-known-advocacy-101/
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Make Your Story Known For ELSA Dealing with a rare condition like ectodermal dysplasia can be very challenging, especially when it comes to navigating the
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