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National Organization for Rare Disorders (NORD) Launches the Living Rare Study – First to Measure Full Scope of Rare Disease Challenges - National Organiza...
https://rarediseases.org/living-rare-study-launch/
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WASHINGTON, DC, October 21, 2024 – Today, the National Organization for Rare Disorders (NORD) introduced the Living Rare Study, a groundbreaking multi-year
