My new research explores civil society and state perspectives on the human rights status of persons with albinism (PWA), a rare genetic condition characterised by reduced or absent pigmentation (melanin) of the hair, skin, and eyes. Albinism has a worldwide incidence of one in 20,000 births. However, rates as high as one in 1,000 births can occur in parts of Africa, such as the six sub-Saharan states in this study – Tanzania, Mozambique, Malawi, Democratic Republic of the Congo, Kenya, and ...
