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People with porphyrias EPP, XLP see delayed diagnosis, high healthcare costs
https://porphyrianews.com/news/people-porphyrias-epp-xlp-delayed-diagnosis-high-healthcare-costs/
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healthcare
diagnosis
erythropoietic protoporphyria
A real-world study analyzed the medical records of EPP and XLP patients in the U.S. who waited about three years for a porphyria diagnosis.
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