Meet Lilly. Lilly is a fun-loving ten-year-old who loves a soak in the bath before bed. Lilly has severe complex needs – and was recently diagnosed with You-Hoover-Fong Syndrome, a rare illness that affects all parts of Lilly's life. Fiona, Lilly's mum, talks to us about the effects on the family of living with You-Hoover-Fong Syndrome.
