Abstract This study explores civil society and state perspectives on the human rights status of persons with albinism (PWA), a rare genetic condition characterized by reduced or absent pigmentation of the hair, skin, and eyes. This analysis examines the “situated knowledge” in civil society organisations (CSOs) regarding the human rights situation of PWA in six sub-Saharan African states. The dataset comes from the Universal Periodic Review (UPR), the United Nations’ five-yearly treaty-...