A story of shoe shopping and resilience in adapting to ALS
When columnist Dagmar Munn's special footwear began to wear out, she went shoe shopping — which required a certain amount of resilience.| ALS News Today
A clinical trial in Australia and Europe will test whether trimetazidine, a medication commonly used to treat heart conditions, could help improve function and quality of life for amyotrophic lateral […] The post Trial in Australia, Europe will test heart drug in ALS patients appeared first on ALS News Today.| ALS News Today – The Web's Daily Resource for ALS News
Before my husband, Todd, had ALS, he enjoyed cooking. He often made omelets on Saturday mornings. He was skilled with a chef’s knife and cut ingredients quickly and finely before […] The post Cooking together remains a joy, even when one of us has ALS appeared first on ALS News Today.| ALS News Today – The Web's Daily Resource for ALS News
Until recently, my language skills and speech were best buddies. They were happily and symbiotically entwined, each supporting the other with comfort and ease. Language — the software system — […] The post Guest Voice: My ALS speech issues have resulted in unexpected gifts appeared first on ALS News Today.| ALS News Today – The Web's Daily Resource for ALS News
Often I do some of my deepest thinking when I’m alone in the car. I regularly drive 35 minutes to ride my horse, and I like to spend that time […] The post Processing my guilt has become a part of my life’s work appeared first on ALS News Today.| ALS News Today – The Web's Daily Resource for ALS News
Last Sunday, on the morning of our 22nd wedding anniversary, as I was getting my husband, Todd, out of bed, he asked if I’d heard the song “To Build a […] The post Building a home amid the loss and uncertainty of ALS appeared first on ALS News Today.| ALS News Today – The Web's Daily Resource for ALS News
When columnist Dagmar Munn's special footwear began to wear out, she went shoe shopping — which required a certain amount of resilience.| ALS News Today
Researchers genetically reprogrammed mouse nerve cells to reverse cell aging, delaying the onset of ALS symptoms in the animals.| ALS News Today
A repurposed veterinary medication, NUZ-001, helped ALS patients live longer and slowed disease progression in a long-term study.| ALS News Today
A brain-computer interface that can translate silent thoughts into spoken words may help speech-impaired people, including those with ALS.| ALS News Today
A new analysis found Radicava ORS (edaravone) slows functional decline and helps adults with amyotrophic lateral sclerosis (ALS) live longer.| ALS News Today
Due to a lack of resources and personnel, the FDA has delayed until October its decision on lifting a clinical hold on ALS drug NUZ-001.| ALS News Today
The ALS therapy ATH-1105 entered the brain and spinal cord at dose-proportional levels in healthy volunteers, and had a good safety profile.| ALS News Today
Coya Therapeutics got FDA clearance for a Phase 2 trial in the U.S. to investigate COYA 302 as an ALS treatment.| ALS News Today
Researchers have developed a blood-based test that shows high accuracy for diagnosing ALS as early as up to 10 years before symptom onset.| ALS News Today
This year's ALS Nexus conference allowed the community to connect with each other, celebrate recent advances, and share hope for the future.| ALS News Today
U.S. and China regulators have now cleared Sineugene Therapeutics' ALS gene therapy SNUG01 for clinical trials.| ALS News Today
Lila is a Science Writer at BioNews. She completed her PhD in neuroscience at the University of Washington, where she studied how the natural flexibility of the human brain can be used to promote recovery after injury. Previously, she has written about science for The Dallas Morning News and the...| ALS News Today
Managing her husband Todd's health needs means continuing to improve the processes for his ALS caregivers, writes columnist Kristin Neva.| ALS News Today
Columnist Kristin Neva and her husband, Todd, marked the 15-year anniversary of his ALS diagnosis with a rare outing and outdoor lunch.| ALS News Today
Electric bidets are popular among people with ALS, writes columnist Dagmar Munn, who first encountered one in Japan and is now a fan.| ALS News Today
Patricia Inacio is a science writer for ALS News Today with a PhD in cell biology. She covers the latest news and information on a variety of amyotrophic lateral sclerosis topics.| ALS News Today
A trial that will test a noninvasive device called MyoRegulator as a treatment for ALS was cleared to start enrolling patients in the U.S.| ALS News Today
Columnist Dagmar Munn ponders the various things that people with ALS wait for, and shares a study with findings on what cultivates hope.| ALS News Today
Radicava (edaravone) is an approved infusion therapy used to slow functional decline in people with amyotrophic lateral sclerosis (ALS).| ALS News Today
Various adaptations and equipment are available that can help a person with ALS eat, dress, use the bathroom, and move around.| ALS News Today
The FDA has granted orphan drug status to Actimed Therapeutics' S-oxprenolol, a treatment candidate that aims to ease muscle wasting in ALS.| ALS News Today
Woolsey received three new U.S. patents covering innovations related to ROCK inhibitor Bravyl (oral fasudil), its investigational ALS drug.| ALS News Today
The analyses offer evidence for a slowing of functional decline and improved survival outcomes with long-term Radicava ORS by ALS patients.| ALS News Today
Neither memantine nor trazodone was able to slow amyotrophic lateral sclerosis (ALS) disease progression in a platform clinical trial.| ALS News Today
An analysis in 62 ALS patients who followed the Phase 2b study's rules (protocol) found a 37.4% ALSFRS-R difference with PrimeC vs. placebo.| ALS News Today
ALS speech problems are caused by a weakening of the muscles of the mouth and throat and worsen over time as the disease progresses.| ALS News Today
Mitochondrial genome mutations may be linked to ALS, per a study, opening the door for new ways of diagnosing and treating the disease.| ALS News Today
Certain rare genetic variants tied to Parkinson’s and other diseases raise the risk of developing ALS by more than three times, per a study.| ALS News Today
The first patient has been dosed in an open-label Phase 1/2 clinical trial of AMT-162, uniQure's one-time gene therapy for SOD1-ALS.| ALS News Today
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Exercise has multiple benefits for people with ALS, such as preserving muscle strength and mobility, and increasing overall quality of life.| ALS News Today
Columnist Dagmar Munn explains how she moved on from a mindset of "why bother?" after her ALS diagnosis. It helps her to live well.| ALS News Today
Two ALS centers launched an initiative to expand access to clinical trials and accelerate improvements in ALS research.| ALS News Today
The Muscular Dystrophy Association (MDA) said it is accepting applications for its Advocacy Collaboration Grants through Oct. 18.| ALS News Today
After an ALS diagnosis, take time to decompress, learn about symptoms and treatment, look into voice banking, and make an advance care plan.| ALS News Today
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After columnist James Clingman's ALS diagnosis, he says he feared sleep. Now, it's a welcome escape to a world of late family and friends.| ALS News Today
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What columnist Dagmar Munn thought was an ALS symptom was just an impostor. "Learned nonuse" was her true problem, and she addressed it.| ALS News Today
An ALS diagnosis requires testing for signs of the neurodegenerative disease that rules out other disorders with similar symptoms.| ALS News Today
The scientists believe the algorithm they developed could be used to help patients and doctors make better treatment and care plans.| ALS News Today
Lindsey Shapiro is a science writer for ALS News Today with a PhD in neuroscience. She covers the latest news and information on a variety of amyotrophic lateral sclerosis topics.| ALS News Today
A gene therapy to increase nerve cell connectivity worked to ease motor dysfunction in an ALS mouse model but did not prolong survival.| ALS News Today
Esteban holds a Master of Science in Immunology from the Instituto Politécnico Nacional in Mexico, focused on inflammation and metabolism. With five years of experience as a Medical Science Liaison, he has worked directly with physicians across a wide range of specialties, covering topics...| ALS News Today
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ALS is a neurodegenerative condition that causes muscle weakness, movement problems, and breathing issues. Learn more about ALS symptoms here.| ALS News Today
Andrea Lobo holds a PhD in cell biology/neurosciences from the University of Coimbra-Portugal, where she studied stroke biology. As a research scientist for 19 years, Andrea participated in academic projects in multiple research fields, including stroke, gene regulation, cancer, and rare...| ALS News Today
About 90% of cases of amyotrophic lateral sclerosis (ALS) are characterized as sporadic ALS, meaning they occur spontaneously.| ALS News Today
The European Commission has approved Qalsody to treat ALS patients in the EU whose disease is associated with mutations in the SOD1 gene.| ALS News Today
The FDA granted conditional approval to tofersen, now Qalsody, for the treatment of ALS associated with mutations in the SOD1 gene.| ALS News Today
Qalsody (tofersen) is conditionally approved in the U.S. as treatment for amyotrophic lateral sclerosis associated with SOD1 gene mutations.| ALS News Today
When more than one person in the same biological family is affected by amyotrophic lateral sclerosis (ALS), it is known as familial ALS.| ALS News Today
Marisa Wexler is a senior science writer for ALS News Today with an MS in cellular and molecular pathology. She covers the latest news and information on a variety of amyotrophic lateral sclerosis topics.| ALS News Today
PrimeC slowed lung function decline and complication-free survival when treatment started early, per data from a Phase 2b ALS clinical trial.| ALS News Today
Starting treatment with PrimeC six months sooner was associated with slower disease progression and a survival benefit for ALS patients.| ALS News Today
The new intravenous formulation of ibudilast is expected to be useful for ALS patients who can't take medicine by mouth.| ALS News Today
ALS is a neurodegenerative condition that affects motor neurons. Learn about the causes and risk factors of ALS.| ALS News Today
Steve Bryson is a science writer for ALS News Today with a PhD in biochemistry. He covers the latest news and information on a variety of amyotrophic lateral sclerosis topics.| ALS News Today
Inspired by the Olympic athletes at the 2024 Paris Games, columnist Dagmar Munn shares the lessons she's applying to her life with ALS.| ALS News Today
Elevated blood and urine levels of metals like copper, selenium, and zinc raised disease risk by 3 times, and shortened patients' lives.| ALS News Today
ALS is a neurodegenerative disorder marked by progressively worsening muscle weakness and neurological dysfunction.| ALS News Today
Clene said it would submit additional CNM-Au8 clinical trial data and analysis to the FDA ahead of a planned meeting later this year.| ALS News Today
CNM-Au8 is an experimental liquid treatment for people with ALS that intends to increase cell energy.| ALS News Today
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Margarida Maia is a science writer for ALS News Today with a PhD in biomedical sciences. She covers the latest news and information on a variety of amyotrophic lateral sclerosis topics.| ALS News Today
There are several ALS treatment options that can help manage symptoms and slow the progression of the disease.| ALS News Today
A brain-computer interface allowed a man with amyotrophic lateral sclerosis to communicate through a computer that used his own voice.| ALS News Today
While traveling with friends, columnist Juliet Taylor is reminded of the importance of living out loud, especially in the face of ALS.| ALS News Today
A Penn State University researcher will use the $250,000 to identify and develop neuroprotective small molecules for ALS and like diseases.| ALS News Today
The selenium elevations with Qalsody may reflect a change in the antioxidant status of nerve cells, but more research is needed.| ALS News Today
Work using a new imaging technique found changes in how the SOD1 protein links with metal ions that seem key for how mutant SOD1 drives ALS.| ALS News Today
I AM ALS has launched the Cures Collective to collectively address unmeet needs in ALS and other neurodegenerative diseases.| ALS News Today
PrimeC led to improvements in iron accumulation in people with amyotrophic lateral sclerosis (ALS) in a clinical trial, new data showed.| ALS News Today
Clene submitted new data on CNM-Au8 to the FDA ahead of an upcoming meeting to discuss potential accelerated approval for the ALS therapy.| ALS News Today
The risk of death was nearly 60% lower in ALS patients given the experimental oral therapy CNM-Au8 than for an external placebo group, data show.| ALS News Today
ALS is a progressive neurological disorder that damages motor neurons. Learn more about types, causes, symptoms, diagnosis, and treatment.| ALS News Today
