Care Guidelines Over the past several decades, perhaps the greatest advances in the fight to end Duchenne have been in care for people living with Duchenne and Becker. Although there is not yet a cure...| Parent Project Muscular Dystrophy
PPMD is pleased to announce the expansion of its renowned Certified Duchenne Care Center (CDCC) Program with the certification of the Neuromuscular Program at Children’s Hospital of Philadelphia (CHOP). In a milestone for the program,...| Parent Project Muscular Dystrophy
We are pleased to share a significant milestone for the Duchenne community: Texas Governor Greg Abbott has officially signed Senate Bill 1044 into law! This legislation requires the Texas Department of State Health Services to...| Parent Project Muscular Dystrophy
For more than a decade, PPMD has worked towards newborn screening (NBS) for Duchenne, including initiating a pilot study in New York State and developing a nomination package for federal review as a recommended condition...| Parent Project Muscular Dystrophy
Find a Certified Duchenne Care Center Every single person living with Duchenne deserves the best care possible. It is important that families know who is in charge of delivering the care they need and understand...| Parent Project Muscular Dystrophy
We are thrilled to announce the launch of PPMD’s Newborn Screening Action Center, a powerful resource designed to both educate and empower you as we work to ensure that every baby, in every state, has...| Parent Project Muscular Dystrophy
Dyne Therapeutics, Inc. has announced positive new clinical data from its ongoing Phase 1/2 DELIVER trial of DYNE-251 in patients with Duchenne who are amenable to exon 51 skipping. DYNE-251 is an exon skipping product...| Parent Project Muscular Dystrophy
