The first memoir about ME that I ever read was Encounters with the Invisible: Unseen Illness, Controversy, and Chronic Fatigue Syndrome by Dorothy Wall, published in 2005. I remember thinking: if I…| Occupy M.E.
Science is under threat. There is no kinder, gentler way to say it. No matter what your politics or health beliefs are, this will hurt you. I join with ME activists everywhere to plead with Congres…| Occupy M.E.
Now that I have been tracking my reading for a few years, it’s interesting to look at the trends. I read sixty books in 2024, only a bit more than 2023 and 2022. That surprised me because I t…| Occupy M.E.
It’s been a year since my breast cancer diagnosis. While I feel like I have finally recovered from treatment, that doesn’t mean my cancer experience is over. I am on medication to preve…| Occupy M.E.
Almost five years after the first cases of COVID-19 in China, I finally got it. Honestly, I expected this test to be positive for flu. My husband and I had been testing COVID negative on rapid antigen tests for days. … Continue reading →| Occupy M.E.
When I was diagnosed with breast cancer last October, I had grand plans: I would blog through my surgery and whatever treatment followed. I was hungry for examples of other people with ME who had b…| Occupy M.E.
Listen, I know that everyone posted their favorite books of 2023 already. I wanted to as well, but my recovery from breast cancer surgery took longer than I anticipated, and now I’m getting radiation treatment. However, I still really want … Continue reading →| Occupy M.E.
I’ve been waiting until I felt well enough to post about my breast cancer surgery and recovery, about the treatment I will begin in January. I have words to say about experiencing the healthcare system as a person with cancer … Continue reading →| Occupy M.E.
I told my husband last week, “It’s just as hard to tell people you have cancer as it is to find out you have cancer in the first place.” So, let me take a deep breath and say: I h…| Occupy M.E.
I got sick on October 6, 1994. Writing a memoir that spans almost three decades requires a lot of self-reflection, not only about what I’ve been through but about the choices I made, what I got wrong, and what I … Continue reading →| Occupy M.E.
