Geoff’s Narration The GIST Whoa! This was a bit of unexpected good news. I had to read the sentence from Solve M.E. below twice to make sure I got it right. “This year’s Senate Appropriations bills include some of the strongest support for ME/CFS we’ve seen in over a […] The post Surprise! The Senate Bill Includes “Some of the Strongest Support for ME/CFS in Years”: Plus, Taking it to the House appeared first on Health Rising.| Health Rising
Geoff’s Narration The GIST Three years ago, I had several discussions with a retired ME/CFS/FM doctor (who also had ME/CFS/FM) named Frank Perrino. Perrino was full of interesting ideas about these diseases, but at one point, our conversations abruptly stopped. I tried but failed to get back in touch […] The post Could ME/CFS and Fibromyalgia Be Narcoleptic Spectrum Disorders? appeared first on Health Rising.| Health Rising
Geoff’s Narration The GIST A Non-Opioid Drug for Fibromyalgia Soon to Hit the US Market On August 15th, the FDA approved Tonmya for use in fibromyalgia (FM). It’s been a long wait – 15 years – since the last drug was approved for FM. I felt like pinching myself. […] The post Tonmya is FDA Approved to Treat Fibromyalgia: CEO Seth Lederman Talks appeared first on Health Rising.| Health Rising
Geoff’s Narration The GIST Finally, we have a study that’s worthy of this disease. This is a disease, after all, that affects millions, is one of the most functionally disabling diseases known to man, and mostly strikes people in the prime of their lives. It’s a pretty big bore […] The post Decoding ME: Big Stakes Genetics Study Puts ME/CFS on Firm Biological Foundation appeared first on Health Rising.| Health Rising
Geoff’s Narration The GIST “We’re seeing things in the front of the brain, we’re seeing issues in the back of the brain, we’re seeing a lot of things in between…this is a brain-wide issue”. It’s safe to say that the ME/CFS brain is an inflamed brain.” Jarred Younger Jarred […] The post Jarred Younger Finds a VERY Inflamed Brain in ME/CFS appeared first on Health Rising.| Health Rising
Geoff’s Narrations The GIST There are “clinical trials”, “Clinical Trials”, and “CLINICAL TRIALS”. We in the ME/CFS world are used to small “clinical trials” that contain maybe a couple of dozen people, may or may not be placebo-controlled and randomized or not, etc., and are too small to tell […] The post An Inflammation Buster for Long COVID? The Bezisterim Clinical Trial appeared first on Health Rising.| Health Rising
Geoff’s Narrations The GIST The Blog How quickly things can turn. Suddenly, fibromyalgia, the forgotten “complex chronic illness (CCI)”, is making waves – and big ones. Move over ME/CFS and long COVID – the biggest news in the CCI world might just be coming from their mostly forgotten cousin […] The post Turning the Pain up in Fibromyalgia (and ME/CFS?): The Antibody-Mast Cell Connection appeared first on Health Rising.| Health Rising
Geoff’s Translations The GIST Redefining Chronic Pain Andreas Goebel of the Pain Research Institute at the University of Liverpool has been trying to redefine how we think about chronic pain for about 20 years. His journey began with a 2010 complex regional pain syndrome (CRPS) paper, which proposed that […] The post Fibromyalgia – Are it (and ME/CFS) Autoimmune Diseases? appeared first on Health Rising.| Health Rising
Geoff’s Narrations The GIST The Blog We’re back to the B-cells, and that brings us back to the Charité 3rd International ME/CFS and long COVID Conference. B and T-cells are the two main players in the adaptive or late immune response. They’re the cells we depend on to wipe […] The post Has the Right B-cell Depleting Drug Been Found for ME/CFS? Daratumumab Shines in Pilot Study appeared first on Health Rising.| Health Rising
Geoff’s Narrations The GIST “Getting to know the people with long COVID and be a part of their journey with this terrible condition is very special to me, and I think that’s true of many people working in this field.” Dr. Peluso Dr. Michael Peluso, MD, is an infectious […] The post “Excited Every Day”: Dr. Michael Peluso on LIINC, Long COVID and ME/CFS appeared first on Health Rising.| Health Rising