January | 2016 | Thoughts About M.E.
1 post published by Jeannette Burmeister during January 2016| Thoughts About M.E.
1 post published by Jeannette Burmeister during January 2016| Thoughts About M.E.
It has taken NIH eight full years to complete their intramural study on Myalgic Encephalomyelitis (or what NIH calls “ME/CFS”) and publish their paper “Deep phenotypic of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome.” I take no pleasure in the fact that … Continue reading →| Thoughts About M.E.
Many ME/CFS* sufferers are covered by employer-sponsored long-term disability (“LTD”) policies. These policies almost universally limit LTD benefits to 24 months for disability caused—or even just contributed to—by a mental/nervous disorder. The following language is taken from a current policy … Continue reading →| Thoughts About M.E.
[Update 5/5/16: For context and background on Ed’s post below, please read my blog post, “Has the “Coyne of the Realm” been devalued?” It describes in detail some of Coyne’s abuse of patients in the ME community, including myself. The mistreatment seems to be ongoing, … Continue reading →| Thoughts About M.E.
[Please also see the follow-up post by my husband, Ed Burmeister, “Standing Up to Coyne and Against Unfair Treatment of ME Advocates.”] A recent addition to the ME advocacy community, Dr. James Coyne, has been celebrated as a savior of ME … Continue reading →| Thoughts About M.E.
NIH has tapped Dr. Brian Walitt as the lead clinical investigator for its intramural study “Post-Infectious Myalgic Encephalomyopathy/Chronic Fatigue Syndrome.” (For terminology, please see the end of the post.) Only a few months ago—in September 2015—Dr. Walitt gave an interview … Continue reading →| Thoughts About M.E.
We are down to the wire; the deadline for public ERISA (“Employee Retirement Income Security Act”) comments—January 19, 2016—is fast approaching. As of yesterday, the Department of Labor (“DOL”) ha…| Thoughts About M.E.
Myalgic Encephalomyelitis (M.E.) Advocacy| Thoughts About M.E.
4 posts published by Jeannette Burmeister during June 2024| Thoughts About M.E.
This is Part 4 of a four-part article on NIH’s Effort Preference claim. Part 1 can be found here. Part 2 can be found here. Part 3 can be found here. Readers who are not intricately familiar with M…| Thoughts About M.E.
This is Part 3 of a 4-part article on NIH’s Effort Preference claim. Part 1 can be found here. Part 2 can be found here. In this Part 3, I will discuss the EEfRT as a psychological measure, NIHR…| Thoughts About M.E.
This is Part 2 of a 4-part article on NIH’s Effort Preference claim. Part 1 can be found here: In this Part 2 of my 4-part series, I am analyzing the EEfRT data to show that they do not suppo…| Thoughts About M.E.
The infamous intramural National Institutes of Health (NIH) paper on post-infectious Myalgic Encephalomyelitis (ME), a disease affecting many millions worldwide, purports to define the ME phenotype…| Thoughts About M.E.
