COMING SOON: ileak registry℠ - Spinal CSF Leak Foundation
Learn more about our international patient registry, ileak registry℠, for patients with spinal CSF leak and how you can be a part of it!| Spinal CSF Leak Foundation
Learn more about our international patient registry, ileak registry℠, for patients with spinal CSF leak and how you can be a part of it!| Spinal CSF Leak Foundation
We are thrilled to welcome Olivia Chelko to the Spinal CSF Leak Foundation as our new Executive Director to help lead our organization.| Spinal CSF Leak Foundation
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All of the 46 talks plus Q&As from the 2nd annual Spinal CSF Leak: Bridging the Gap conference held November 2024 in Aurora, Colorado. The post Spinal CSF Leak: Bridging the Gap 2024 conference videos are live! appeared first on Spinal CSF Leak Foundation.| Spinal CSF Leak Foundation
The following is a transcript of a Q&A session at Spinal CSF Leak: Bridging the Gap 2024. Please note that the transcript been edited for length and clarity to center on the participant questions, whether put forward via online or in-person submission. Moderator: I’d like to start this by asking one of the online […] The post Bridging the Gap 2024: Q&A Session 3 appeared first on Spinal CSF Leak Foundation.| Spinal CSF Leak Foundation
Please note: This video cannot be played on this page because it includes surgical images that are age-restricted on YouTube. Please click on the photo above to access the video in YouTube itself. Slides Download the Slides Transcript Thank you. Thank you so much. It’s a real pleasure and honor to be here. Thank […] The post Physician talk: Surgery for PDPH: Blebs and needle holes — Dr. Juergen Beck appeared first on Spinal CSF Leak Foundation.| Spinal CSF Leak Foundation
Please note: This video cannot be played on this page because it includes surgical images that are age-restricted on YouTube. Please click on the photo above to access the video in YouTube itself. Slides Download the Slides Transcript Thank you. I want to thank Andy and Jen for inviting me, and it’s a very great […] The post Physician talk: CSF-venous fistulas: Why or why not to surgically repair? — Dr. Vinay Deshmukh appeared first on Spinal CSF Leak Foundation.| Spinal CSF Leak Foundation
Please note: This video cannot be played on this page because it includes surgical images that are age-restricted on YouTube. Please click on the photo above to access the video in YouTube itself. Transcript Alright, good morning everyone. Thanks, everyone, for being here. It’s my pleasure to be part of the leak program here […] The post Physician talk: Basics of surgery for spinal CSF leaks: What, why, & how? — Dr. Peter Lennarson appeared first on Spinal CSF Leak Foundation.| Spinal CSF Leak Foundation
The following is a transcript of a Q&A session at Spinal CSF Leak: Bridging the Gap 2024. Please note that the transcript been edited for length and clarity to center on the participant questions, whether put forward via online or in-person submission. Question: From a physician perspective: what can patients do communication-wise to give themselves […] The post Bridging the Gap 2024: Q&A Session 2 appeared first on Spinal CSF Leak Foundation.| Spinal CSF Leak Foundation
Slides Download the Slides Transcript Thank you for the introduction. Growing up, I had the privilege of thinking that medical problems would have simple solutions. I never broke a limb myself, but for friends who did, it was a straightforward fix. I had significant stomach and GI issues when I was younger, which in my […] The post Patient talk: Navigating concurrent conditions while deferring treatment — Jodi Ettenberg appeared first on Spinal CSF Leak Foundation.| Spinal CSF Leak Foundation
Transcript It’s great to be here and talk to you about this. It’s always difficult to follow both Wouter and Peter because they’re so good, but I think we all have individual differences in how we do things, and we’ll talk a little bit about why that might be. Disclosures – I showed this QR […] The post Physician talk: The imaging negative brain in SIH: How I do it — Dr. Ian Carroll appeared first on Spinal CSF Leak Foundation.| Spinal CSF Leak Foundation
Transcript Thank you for the introduction. As mentioned, my name is Laura Tietz, and I’ve been a leak patient for just about four years. I’m here to discuss CSF venous fistula treatments, specifically transvenous embolization from a patient’s point of view. Please understand that these experiences are exclusively my own – unless otherwise noted – […] The post Patient talk: CSF-venous fistula treatments from the patient’s point-of-view — Laura Tietz, PharmD, RPh appeared first ...| Spinal CSF Leak Foundation
Transcript Perfect, thanks a lot for the introduction, and thanks a lot for pronouncing my name correctly – it’s a tough job, I know. So, congratulations to the faculty around Andrew for setting up this meeting. It’s fantastic, and this mode is really something we can maybe have more of in the future. So, thanks […]| Spinal CSF Leak Foundation
Intracranial hypotension due to spinal CSF leak is an important and under-diagnosed cause of new onset headache.| Spinal CSF Leak Foundation
Headache on the Hill, which took place March 22-23, is an annual advocacy event in Washington DC organized by the Alliance for Headache Disorders Advocacy (AHDA), whose mission is to advocate for equitable policies for people with headache diseases—including intracranial hypotension. Spinal CSF Leak Foundation is a proud member of AHDA, and this year sent […]| Spinal CSF Leak Foundation
A patient advocate describes her experience at Headache on the Hill 2022, working on equitable policies for those with headache disorders| Spinal CSF Leak Foundation
Chiari 1 Malformation and spinal CSF leak have much in common—but they should not be confused, as treatment varies significantly.| Spinal CSF Leak Foundation
The Spinal CSF Leak Foundation, as a patient-led organization, actively supports research in spontaneous intracranial hypotension (SIH).| Spinal CSF Leak Foundation
