Neuromyelitis News: Latest treatments, news, and research
Get the latest information on neuromyelitis including news, research, treatments, clinical trials, patient stories, and more.| Neuromyelitis News
Get the latest information on neuromyelitis including news, research, treatments, clinical trials, patient stories, and more.| Neuromyelitis News
Nearly all adults with neuromyelitis optica spectrum disorder (NMOSD) experience headaches, especially migraines, a single-center study in Iran suggests. The presence of abnormalities in brain MRI scans and the use of the immunosuppressive therapy rituximab were each linked to an increased chance of new or worsening headaches after a NMOSD diagnosis, according to data. “Improved […] The post Study links headaches in NMOSD to changes in the brain appeared first on Neuromyelitis News.| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
I had waited 16 years to hear one of my favorite bands of all time perform, as their catalog of music was the soundtrack to my youth. That’s how long Oasis, one of the most iconic bands of the 1990s and early 2000s, had been absent from North America — and, before this reunion tour, […] The post An Oasis concert made hope feel possible again appeared first on Neuromyelitis News.| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
A six-week psychotherapy program, tailored specifically for people with neuromyelitis optica spectrum disorder (NMOSD) and delivered via telehealth, helped to ease anxiety and depression in adults with these conditions — with benefits lasting up to three months after treatment. These are the findings of a U.S. pilot clinical trial (NCT05840055) that tested ACT with NMOSD, an […] The post Telehealth offers a new path for improving mental health in NMOSD appeared first on Neuromyelitis News.| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
As an immune-compromised NMOSD patient, columnist Jennifer V. wishes others would remember the lessons of the pandemic.| Neuromyelitis News
As wildfires rage across Ontario, Canada, and neighboring provinces, the skies over Toronto have turned hazy and the air has become a silent threat. For most, this means itchy eyes and a scratchy throat. But for those of us living with neuromyelitis optica spectrum disorder (NMOSD), the consequences run deeper, into the very nerves that […] The post How the Ontario wildfires threaten my health, given my NMOSD appeared first on Neuromyelitis News.| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
Ultomiris (ravulizumab), an approved infusion therapy for adults with neuromyelitis optica spectrum disorder (NMOSD), is closer to being eligible for reimbursement under public drug plans in Canada, according to its developer, Alexion, AstraZeneca Rare Disease. The company signed a letter of intent with the pan-Canadian Pharmaceutical Alliance (pCPA). This government partnership negotiates drug prices for […] The post Cost of Ultomiris for NMOSD may soon be reimbursable in Canada appeared f...| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
Some days I feel like I’m made of symptoms. Living with neuromyelitis optica spectrum disorder (NMOSD) means navigating a body that’s constantly shifting beneath me, unpredictable in ways that defy preparation. Speaking of symptoms: One moment, my spine burns with relentless pain. The next day I’m ravenous, only to be hit with nausea before I […] The post When eye shadow and fingernail polish are types of treatment appeared first on Neuromyelitis News.| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
People diagnosed with neuromyelitis optica spectrum disorder (NMOSD) who lose their jobs or cut back on their hours likely contend with vision loss, worsening pain, the use of walking aids, and frequent fatigue or depressed mood, an international study reports. “Developing a robust set of disability guidelines to protect patients against workplace discrimination … along […] The post Disability, depression after NMOSD diagnosis likely lead to job changes appeared first on Neuromyelitis N...| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
It’s been some time since my last neuromyelitis optica spectrum disorder (NMOSD) attack, and lately, I’ve started to realize just how traumatic the previous year was for me. I recognize that I’m holding in this trauma and still fear another attack, and it’s adversely affecting my life. With more time to myself lately, I’ve gained […] The post How I’m processing ongoing trauma by creating space for myself appeared first on Neuromyelitis News.| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
A study linked late-onset neuromyelitis optica spectrum disorder to worse recovery from relapses and faster disability progression.| Neuromyelitis News
Using noninvasive eye scans may help clinicians to determine if patients — particularly those in early disease stages — have neuromyelitis optica spectrum disorder (NMOSD) or multiple sclerosis (MS), both immune system disorders. That’s according to a review of published studies that together reveal that people with NMOSD have a lower density of blood vessels […] The post Eye scans may be helpful tool to distinguish NMOSD, MS in patients appeared first on Neuromyelitis News.| Neuromyelitis News – The Web's Daily Resource for Neuromyelitis Optica News
Since her NMOSD diagnosis, columnist Jennifer V. has found routines crucial for distinguishing between bad days and signs of a flare-up.| Neuromyelitis News
Uplizna reduces several subsets of immune B-cells that are linked to relapses in people with neuromyelitis optica spectrum disorder, data show.| Neuromyelitis News
Symptoms of late-onset NMOSD, occurring in patients over 50, may look like those of a stroke and can delay proper diagnosis and treatment.| Neuromyelitis News
Attacks marked by spinal cord inflammation significantly increase the chance of worse disability in NMOSD and MOGAD, per a study.| Neuromyelitis News
Regular rituximab treatment in neuromyelitis optica spectrum disorder resulted in less disability and fewer relapses, per a real word study.| Neuromyelitis News
A new AI model that analyzes images of the eye can help accurately identify neuromyelitis optica spectrum disorder (NMOSD), a study shows.| Neuromyelitis News
Columnist Jennifer V. says she's learned a valuable lesson about coping with chronic illness by leaning into advocacy, rest, and community.| Neuromyelitis News
Most neuromyelitis optica spectrum disorder patients experience impaired sleep and worse disability relative to healthy people, per a study.| Neuromyelitis News
Nearly all neuromyelitis optica spectrum disorder patients on Enspryng remain free from relapses after six months, a real-world study in Japan shows.| Neuromyelitis News
The findings support the idea that gut microbiota and the gut-brain axis factor in NMOSD, and that approaches like GV-971 may help patients.| Neuromyelitis News
Higher levels of the signaling molecule CXCL13 detected in the blood and CSF fluid of NMOSD patients were accompanied by worse disability.| Neuromyelitis News
NMOSD is among autoimmune disease risk factors, with patients at about nine times the risk of developing another condition, per a study.| Neuromyelitis News
Even though it's hard, columnist Jennifer V. hopes to be patient enough to outlast current health and professional struggles.| Neuromyelitis News
No description.| Neuromyelitis News
As columnist Jennifer van Amerom celebrates her daughter's 10th birthday, she reflects on the risks and challenges of NMO and pregnancy.| Neuromyelitis News
No description.| Neuromyelitis News
For columnist Jennifer V., telehealth appointments have made care more accessible, but some things just can't be done virtually, she says.| Neuromyelitis News
Rituximab and mycophenolate mofetil may offer the most effective off-label alternatives for NMOSD patients, according to a study.| Neuromyelitis News
Columnist Jennifer V. gives thanks for the support and encouragement of her readers, who remind her of the power of the NMOSD community.| Neuromyelitis News
Understanding the body’s limits is key to conserving energy, writes columnist Jennifer V., who prioritizes her daily tasks with rest in mind.| Neuromyelitis News
Stressors drain energy that's already limited by NMOSD, says columnist Jennifer V., who shares how she's surviving the storms of life.| Neuromyelitis News
A recent increase in her NMOSD pain prompts columnist Jennifer V. to try acupuncture again, for the first time since her diagnosis.| Neuromyelitis News
The platelet-to-lymphocyte ratio may be used as a biomarker of disability severity in people with NMOSD, a study found.| Neuromyelitis News
Columnist Jennifer V. explains what "bed rotting" is and how it can be useful for NMOSD patients who need rest and recovery to avoid flares.| Neuromyelitis News
Patricia Inacio is a science writer for Neuromyelitis News with a PhD in cell biology. She covers the latest news and information on a variety of NMO topics.| Neuromyelitis News
Margarida Maia is a science writer for Neuromyelitis News with a PhD in biomedical sciences. She covers the latest news and information on a variety of NMO topics.| Neuromyelitis News
NMOSD patients who are positive for the anti-AQP4 antibodies were more likely to have other autoimmune diseases, a study in Argentina shows.| Neuromyelitis News
A new predictive model to identify neuromyelitis optica spectrum disorder patients at a higher risk of relapse was found accurate in a study.| Neuromyelitis News
Neuromyelitis optica spectrum disorder (NMOSD) is an autoimmune disease that causes inflammation of the optic nerve and the spinal cord.| Neuromyelitis News
Marta Figueiredo is a science writer for Neuromyelitis News with a PhD in biomedical sciences. She covers the latest news and information on a variety of NMO topics.| Neuromyelitis News
A Phase 1 clinical study tested the therapy in 15 patients positive for antibodies against AQP4, those most commonly associated with NMOSD.| Neuromyelitis News
Living with NMOSD and its resulting disability can make it hard to find and keep employment, a new U.S. study highlights.| Neuromyelitis News
CAR T-cells are able to rapidly eliminate disease-driving immune cells in people with neuromyelitis optica spectrum disorder, or NMOSD.| Neuromyelitis News
NMOSD Awareness Month, featuring events and campaigns, focuses on celebrating milestones while living with the rare neuroimmune disease.| Neuromyelitis News
A family of molecules that can influence immune activity may spot neuromyelitis optica spectrum disorder in people, serving as biomarkers.| Neuromyelitis News
Columnist Jennifer van Amerom reflects on married life with NMO, and expresses her gratitude for her husband, Mike.| Neuromyelitis News
Nearly all clinicians (88%) in a U.S. survey have prescribed approved NMOSD treatments for their patients with anti-AQP4 antibodies.| Neuromyelitis News
Infections of shingles and cold sores were found to be associated with AQP4 antibody-positive neuromyelitis optica spectrum disorder.| Neuromyelitis News
Uplizna is an FDA-approved treatment for adults with neuromyletis optica spectrum disorder who test positive for AQP4-IgG antibodies.| Neuromyelitis News
Uplizna prevented autoimmune attacks in people with neuromyelitis optica spectrum disorder who received the treatment for four years or more.| Neuromyelitis News
Depression, anxiety, and sleep disturbances are common among patients with neuromyelitis optica spectrum disorder, a new meta-analysis shows.| Neuromyelitis News
Columnist Candice Galvan shares how she came to realize that to better care for her daughter, she needed to protect her own mental health.| Neuromyelitis News
In her debut column for "The Beginner's Guide to Walking," Jennifer van Amerom describes the role music played in her NMOSD diagnosis.| Neuromyelitis News
A discussion with fellow neuromyelitis optica patients prompts columnist Jennifer van Amerom to address her mental health symptoms.| Neuromyelitis News
Columnist Jennifer Van Amerom knows that reducing stress is a step in the right direction, but she has her own ideas about how to do it.| Neuromyelitis News
Nearly all neuromyelitis optica spectrum disorder patients who took Enspryng are free from relapses after six months, a Japanese study shows.| Neuromyelitis News
NMOSD may begin to manifest as hard-to-treat nausea, vomiting, or hiccups — a condition called area postrema syndrome — delaying a diagnosis.| Neuromyelitis News
Diagnosing NMOSD typically involves a detailed medical history, a thorough clinical evaluation, and specialized imaging and laboratory tests.| Neuromyelitis News
Category archive page for Columns.| Neuromyelitis News
NMOSD patients who have had only one relapse tend to underestimate their future relapse risk, but this pattern changes with more relapses, a study finds.| Neuromyelitis News
Marisa Wexler is a senior science writer for Neuromyelitis News with an MS in cellular and molecular pathology. She covers the latest news and information on a variety of NMO topics.| Neuromyelitis News
Lindsey Shapiro is a science writer for Neuromyelitis News with a PhD in neuroscience. She covers the latest news and information on a variety of NMO topics.| Neuromyelitis News
Taking ginseng tablets twice a day for three months lessened fatigue in people with NMOSD, a placebo-controlled Phase 3 trial found.| Neuromyelitis News
Rituximab was more efficient at preventing relapses than oral immunosuppressive therapies in a racially diverse group of people with NMOSD.| Neuromyelitis News
Three weeks of low-dose rituximab was found to prevent relapses and disability progression in NMOSD patients, without serious side effects.| Neuromyelitis News
While neuromyelitis optica spectrum disorder's causes are not fully understood, self-reactive antibodies against AQP4 are known major drivers.| Neuromyelitis News
Enspryng (satralizumab-mwge) is an injection therapy approved for adults with neuromyelitis optica spectrum disorder (NMOSD).| Neuromyelitis News
Neuromyelitis optica spectrum disorder affects the optic nerve, spinal cord, and sometimes the brainstem, resulting in a number of symptoms.| Neuromyelitis News
Category archive page for News.| Neuromyelitis News
Steve Bryson is a science writer for Neuromyelitis News with a PhD in biochemistry. He covers the latest news and information on a variety of NMO topics.| Neuromyelitis News
Sex ratio and age at onset among NMOSD patients are influenced by the proportion of cases with anti-AQP4 antibodies, a review study found.| Neuromyelitis News
What others may see as mood swings, columnist Jennifer van Amerom argues, are often reactions to trauma or treatment.| Neuromyelitis News
Neuromyelitis optica spectrum disorder patients whose first symptoms affect the brainstem are often misdiagnosed and have more relapses, a study finds.| Neuromyelitis News
With optic neuritis symptoms lingering despite treatment, columnist Jennifer van Amerom is trying to listen to what her body tells her.| Neuromyelitis News
Immunosuppressive therapy is safe and was found to significantly reduce relapses in elderly patients with late-onset NMOSD, per a study.| Neuromyelitis News
After a series of plasma exchange sessions, columnist Jennifer van Amerom is hoping her vision fully returns to normal.| Neuromyelitis News
Off-label rituximab significantly reduces the risk of relapse and lessens disability in most NMOSD patients, a long-term study showed.| Neuromyelitis News
Career changes, new home hunts, and symptom flares are a lot to handle, says columnist Jennifer van Amerom, who's juggling life and NMOSD.| Neuromyelitis News
In patients treated with Enspryng, researchers found the proportions of B-cells was unchanged, suggesting it altered their characteristics.| Neuromyelitis News
Uplizna safely provided sustained disease control for NMOSD patients, according to final data from a Phase 2/3 clinical trial.| Neuromyelitis News
