Two years ago, Beth Mazur, who co-founded #MEAction and spent years advocating for better care and more research, committed suicide during a stay with her close friend and fellow person with ME, Julie Rehmeyer. It is hard to imagine what feels unimaginable—the shock and pain of finding the body of someone you love in their […]| Trial By Error
A journal under the Lancet umbrella, eClinicalMedicine, recently published a study from China called “Effects of therapeutic interventions on long COVID: a meta-analysis of randomized controlled trials.” (I wrote about it here.) The authors themselves determined that most of the research they included was, to be charitable, on the crappy side. Nonetheless, they claimed “high-certainty […]| Trial By Error
In April, the Hungarian journal Orvosi Hetilap [Medical Weekly] published an article called “Interdisciplinary consensus statement about the diagnosis and treatment of chronic fatigue syndrome/myalgic encephalomyelopathy.” The goal, according to the abstract, “is to provide appropriate information for professionals working in the Hungarian health care system: physicians, psychologists, physiotherapists, and dietitians.” [The journal site itself […]| Trial By Error
Keystone gathering round-up from Sick Times Many prominent Long COVID researchers gathered in Santa Fe, New Mexico, last week to discuss ongoing research and brainstorm in efforts to advance the field at the second Keystone Symposia on Long COVID and other post-acute infection syndromes. The first such event was held in the same city two […]| Trial By Error
By David Tuller, DrPH| Trial By Error
More on the BMJ Opinion Piece from the Psychobabblers| trialbyerror.org
People with ME/CFS differ genetically from the general population, according to the long-awaited results of the largest biological study of the disease to date. By comparing DNA samples from more than 15,000 patients with ME/CFS diagnoses to samples from those who were not diagnosed, the investigators identified eight “genetic signals,” including ones relating to immune…| trialbyerror.org
By David Tuller, DrPH| Trial By Error
Null Results in Physiotherapy Trial for Functional Motor Disorder| trialbyerror.org
By David Tuller, DrPH| Trial By Error
BMJ’s “Commissioned” Propaganda Piece Hijacked Death of Maeve Boothby O’Neill; Boothby O’Neill’s Mum Responds| trialbyerror.org
Under the editorial leadership of Kamran Abbasi, The BMJ and other journals in BMJ Group have become, at times, mouthpieces for members of the biopsychosocial ideological brigades. That hasn’t been surprising, given his actions during his previous tenure as editor of the Journal of the Royal Society of Medicine. Under his stewardship, the journal published […]| Trial By Error
A coroner in west England has called out the shortage of services for those with severe ME after conducting an inquest into the case of a woman with the illness who committed suicide last summer. The coroner for the Avon area, Debbie Rookes, prepared what is called a Regulation 28 Report to Prevent Future Deaths […]| Trial By Error
Social Science & Medicine (SSM) is a prominent interdisciplinary journal that publishes social science research related to health. A recently published SSM paper is called “Chronicity rhetoric in health and welfare systems inhibits patient recovery: a qualitative, ethnographic study of fibromyalgia care.” Part of a larger, multi-partner, Oxford-based project called Patient-centred Care for Fibromyalgia: New […]| Trial By Error
By David Tuller, DrPH| Trial By Error
Sander Zurhake is an investigative reporter for Nederlandse Omroep Stichting (NOS), a major Dutch broadcasting organization. On May 30th, NOS released television, radio and online reports about the potential harms of psycho-behavioral treatments for children with ME/CFS. In particular, the stories focused on the kind of cognitive behavior therapy (CBT, although rendered CGT in Dutch) […]| Trial By Error
For decades, Kumar & Clark’s Clinical Medicine has been a standard textbook for medical education around the world. Last month, Elsevier pubished the 11th edition. The miniscule section on what it calls “chronic fatigue syndrome/myalgic encephalopathy” is pathetic. This section is in a chapter called “General Hospital Psychiatry,” promotes “psychological symptoms” as a core component […]| Trial By Error
By David Tuller, DrPH| Trial By Error
New Study Documents Iatrogenic Harm from Perceived Psychosomatic and Psychiatric Misdiagnoses of Rheumatic Diseases| trialbyerror.org
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
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By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
It’s been five years, more or less, since the start of the coronavirus pandemic–and the subsequent wave of Long Covid. I spoke earlier today with Jaime Seltzer, #MEAction’s scientific director, about how early links were forged between advocates for people with ME and those experiencing what became known as Long Covid, what we’ve learned since, and where things are now. Seltzer was included on Time magazine’s list of the 100 “most influential people in health in 2024.”| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
Yesterday, in Sydney, I gave a presentation at the Kirby Institute, a renowned research center at the University of New South Wales, along with my friend and colleague Dr David Joffe, a respiratory medicine specialist. David spoke about the pathophysiology of Long Covid as well as the enormous economic burden of the disease. I spoke about the problems with the clinical trials of psycho-behavioral interventions—specifically, the infamous PACE trial for ME/CFS and the recent REGAIN trial for ...| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
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Nicola Baker| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
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By David Tuller, DrPH| Trial By Error
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By David Tuller, DrPH| Trial By Error
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By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error
By David Tuller, DrPH| Trial By Error