#MEAction has been working hard with #NotJustFatigue to advocate for the ME/CFS Research Roadmap and it has paid off! The Senate Appropriations Committee included the roadmap in their report! This is a big step in the right direction. Everyone’s advocacy, including the work of #NotJustFatigue and Solve M.E. have led to this step. I am| #MEAction Network
#MEAction has been working hard with #NotJustFatigue to advocate for the ME/CFS Research Roadmap and it has paid off! The Senate Appropriations Committee included the roadmap in their report! This is a big step in the right direction. Everyone’s advocacy, including the work of #NotJustFatigue and Solve M.E. have led to this step. I am … Celebrating A Big Senate Win Read More »| #MEAction Network
We are excited to share some promising updates about the scientific work #MEAction is leading to advance the field of ME/CFS research. Our Scientific Director, Jaime Seltzer, is in the process of coordinating analysis for three major studies, including our massive symptoms survey and pacing survey, drawn directly from the patient experience. Jaime is also … #MEAction’s Pacing Narrative Data Gets Published in First Paper + MORE Science updates! Read More »| #MEAction Network
Learn more about this year’s project| #MEAction Network
The University of North Carolina closed its Long COVID clinic last week after its federal funding ran out. It was the sole Long COVID clinic in North Carolina. The clinic has been a lifeline to thousands of people living with complex conditions often triggered by infection, including Long COVID, myalgic encephalomyelitis / chronic fatigue syndrome … Press Release: UNC Closes its Long COVID Clinic – the Only One in the State Read More » The post Press Release: UNC Closes its Long COVID ...| #MEAction Network
#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers: Join us for our Pillow Writers En Español meetings! A place where ME/CFS/Long Covid patients are welcome to participate through writing. This #MEAction-sponsored event has been held in English for over three years. We … Pillow Writers en Español Read More »| #MEAction Network
Happy Juneteenth from all of us here at #MEAction! Juneteenth commemorates June 19th, 1865 when slavery of African-Americans was officially enforced. To celebrate we have put together a summer reading list of books by disabled Black authors. Keah Brown is an American author who was born with cerebral palsy. She created the popular hashtag #disabledandcute … Happy Juneteenth + Black Disabled Authors Reading List Read More »| #MEAction Network
We have good news! The first-in-the-nation Long COVID program run by the Minnesota Department of Health (MDH) has been saved from elimination! This means #MEAction will be able to continue its work helping Minnesotans with ME/CFS, Long COVID and related conditions access vital home and community-based support services, as part of our multi-year grant. Last … Minnesota’s Long COVID Funding Saved from Elimination Read More »| #MEAction Network
On Wednesday 14th May 2025, #MEAction Scotland held Millions Missing Scotland outside the Scottish Parliament in Edinburgh. The rally sent a clear and urgent message to the Scottish Government to act on the £4.5 million pledged in the 2025-26 budget for specialist support for ME, Long Covid, and other similar conditions. This year’s theme, ‘Red … Millions Missing Scotland 2025 raises a red alert Read More »| #MEAction Network
We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family. The post Research Roadmap Petition appeared first on #MEAction Network.| #MEAction Network
At 5:00 pm Eastern time yesterday, we found out that the Minnesota house would be voting on a bill that would remove funding to all Long COVID grants, including #MEAction’s grant, which allows us to provide direct support to people with ME and Long COVID. This is yet another SOS moment for people in our … SOS: #MEAction Responds to Urgent Crisis – MN Long COVID Funding At Risk Read More » The post SOS: #MEAction Responds to Urgent Crisis – MN Long COVID Funding At Risk appeared first...| #MEAction Network
