Award aims to recognize the importance of good clinical research and encourage early career investigators in clinical studies in MdDS| MdDS Foundation
This poem expresses both the disorientation and emotional toll of MdDS and the strength, resilience, and grace required to navigate it.| MdDS Foundation
Win your very own zebra to take everywhere you go. Snap photos. And tell everyone your MdDS Zebra Tale. Learn how!| MdDS Foundation
Get our educational brochure in English, German, French and Spanish. Easy to download, print and share! Find them & more resources here.| MdDS Foundation
Learn about MdDS through media coverage including television, magazines and newsprint, radio and blogs. Read and watch more news covering MdDS!| MdDS Foundation
Remarkably simple to use and available as a book mark. 🖨️ Or download and print to start using today. Bridge the communication gap between doctors and patients! The post NEW Severity Scale Simplifies MdDS Symptom Tracking appeared first on MdDS Foundation.| MdDS Foundation
The MdDS Foundation is proud to have a distinguished group of volunteers dedicated to supporting the MdDS Patient Registry. In the coming weeks, we'll be highlighting other members and the important work they do. The post Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT appeared first on MdDS Foundation.| MdDS Foundation
It’s silly, but sometimes it's a bit of comic relief that pulls me from despair. My superpower is a special ability, and why I feel the way I do. The post Disability or Superpower? appeared first on MdDS Foundation.| MdDS Foundation
Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes. The post Part 2: The 2024 Breakthrough Summit, Tote & PAOs appeared first on MdDS Foundation.| MdDS Foundation
The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog. The post Alone we are Rare. Together we are Strong. appeared first on MdDS Foundation.| MdDS Foundation
Eleven years ago, Sylvia Hemby's joyful vacation in Hawaii turned into a challenging experience due to her diagnosis of Mal de Débarquement Syndrome (MdDS). The disorder caused a persistent sense of rocking. Yet, she found solace in creating seashell art, channeling her struggles into beauty and resilience, representing her journey of growth. The post A Journey Through Uncharted Waters: My Life with MdDS appeared first on MdDS Foundation.| MdDS Foundation
When I found out I wasn't alone in having MdDS, knowing many suffered and many had remissions or found ways to feel better, it helped me change my attitude. ~Kim The post MdDS after a Cruise in 2019. 🚢 It’s 2024. appeared first on MdDS Foundation.| MdDS Foundation
"I hope to help people understand how debilitating MdDS is and how frustrating it is to look fine on the outside but silently suffer." ~Dawn #thestruggleisreal| MdDS Foundation
Mal de Débarquement, Disembarkment or Debarkation Syndrome is a disorder that leaves patients with a constant feeling of movement, as if on a boat. The MdDS Foundation advocates for and seeks treatments to end the suffering from MdDS. Learn more!| MdDS Foundation
MdDS is a disorder that leaves patients feeling as if they are rocking and bobbing, as if on a boat. Learn more about the syndrome's symptoms and diagnosis.| MdDS Foundation