After a long delay, the UK Government's Final Delivery Plan for ME/CFS was finally published last Tuesday.| www.thereforme.uk
We had a busy day yesterday at #ThereForME HQ responding to the Delivery Plan publication.| #ThereForME
#ThereForME's response to the Delivery Plan's publication| #ThereForME
First things first, we’re very proud of our Oonagh who started work last week as the brand new Communications and Policy Lead at Visible. In her honour, this week we’re bringing you a visibility themed update (bear with us, we’re short on ideas and in a heatwave).| #ThereForME
We're chasing seeds of hope today despite some frustrating Delivery Plan news| #ThereForME
Patients share their challenges, and the actions needed| #ThereForME
Most of our readers will already be well aware of the ongoing outrage around the government’s recent plans for disability benefits reform.| #ThereForME
How my experience of rest as an athlete clashed with my experience of rest as a patient| #ThereForME
Solidarity can sometimes feel in short supply for people living with ME and Long Covid, but recently we’ve seen hopeful signs - both in the wider disability community and specifically in support of those affected by these conditions.| #ThereForME
It feels like it’s been a while since our last update!| #ThereForME
A joint statement from organisations supporting people with ME and Long Covid| #ThereForME
Lately at #ThereForME HQ we’ve been thinking a lot about evidence-based advocacy.| #ThereForME
Your essential update on the Delivery Plan for ME/CFS| #ThereForME
Why the right words don’t exist, and how we can find them| #ThereForME
Having ME or Long Covid, or caring for someone who does, can be a lonely experience.| www.thereforme.uk
#ThereForME is a campaign founded by Karen and Emma, two carers for partners with very severe ME/Long Covid. #ThereForME is calling for an NHS that's there for people with ME and Long Covid. Follow our Substack to stay up to date with the latest. Click to read #ThereForME, by Karen Hargrave, a Substack publication with thousands of subscribers.| www.thereforme.uk
