It's empowering to attend a patient forum where people 'get it'
Columnist Kerry Wong shares highlights from the recent Bridging Autoimmunity: Patient Forum hosted by IMIDeology.| Sarcoidosis News
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“This is a true story based on a lie.” That’s how each episode of “Apple Cider Vinegar,” a Netflix series released earlier this year, begins. The show tells the story […] The post Drama series reflects the best, worst of online patient communities appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
The Foundation for Sarcoidosis Research (FSR) marks 25 years of work to help people with sarcoidosis live better lives with an evening gala honoring leaders and partners driving research, care, […] The post Sarcoidosis foundation marks 25 years of research, advocacy for cure appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
Treatment with Atyr Pharma’s efzofitimod, known as EFZO-FIT for short, led to improvements in general health-related quality of life and reductions in fatigue for adults with pulmonary sarcoidosis taking part […] The post Efzofitimod boosts life quality, eases fatigue in pulmonary sarcoidosis appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
Columnist Kerry Wong shares highlights from the recent Bridging Autoimmunity: Patient Forum hosted by IMIDeology.| Sarcoidosis News
About 35 in every 100,000 people live with sarcoidosis in the U.S., and most are located near urban areas on the East Coast, a study reports.| Sarcoidosis News
Löfgren syndrome is an acute but usually milder form of sarcoidosis, characterized by patches of inflammatory cells called granulomas, that usually resolves with or without treatment.| Sarcoidosis News
Teresa Carvalho is a science writer for Sarcoidosis News with an MS in cell and molecular biology. She covers the latest news and information on a variety of sarcoidosis topics.| Sarcoidosis News
Treatment with rituximab can lead to meaningful improvements for some people with neurosarcoidosis affecting the brain and/or spinal cord — particularly those with hard-to-treat disease and involvement limited to some […] The post Rituximab treatment may help some neurosarcoidosis patients appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
Sitting at the infusion center for my intravenous immunoglobulin (IVIG) treatment, I opened up a Google Docs tab on my laptop. I’d just gotten an idea for a column, and […] The post With chronic illnesses like sarcoidosis, community is key appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
Sarcoidosis is a chronic, multi-organ disease for most patients, with the potential to become more severe over time, a study has found.| Sarcoidosis News
EFZO-FIT, a Phase 3 clinical study testing efzofitimod for pulmonary sarcoidosis, failed to meet its main goal of significantly reducing the need for corticosteroids among people with the rare inflammatory disease. […] The post Efzofitimod misses main goal in large pulmonary sarcoidosis trial appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
People with sarcoidosis who respond poorly to tumor necrosis factor inhibitors (TNFi) — used to treat the immune system disease when other therapies haven’t worked — frequently develop anti-drug antibodies […] The post Monitoring for anti-drug antibodies may help improve sarcoidosis care appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
When combined, four newly found blood biomarkers nearly perfectly predicted disease progression in pulmonary sarcoidosis patients in a study.| Sarcoidosis News
Steve Bryson is a science writer for Sarcoidosis News with a PhD in biochemistry. He covers the latest news and information on a variety of sarcoidosis topics.| Sarcoidosis News
Black women with sarcoidosis have a nearly twofold higher risk of kidney stones, with the odds increasing with metabolic conditions.| Sarcoidosis News
Read about how wide-ranging sarcoidosis symptoms are, and how they often affect the lungs but also can affect many other organs.| Sarcoidosis News
Among people with cardiac sarcoidosis on immunosuppressants, heart involvement alone linked with more serious events in a small study.| Sarcoidosis News
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Cardiac sarcoidosis is systemic sarcoidosis that affects the heart muscle, and raises the risk of arrhythmias and congestive heart failure.| Sarcoidosis News
I started writing this column a few weeks ago when I was angry. I was irate, it was festering, and I had to get it out. I started jotting down […] The post It’s OK to get angry when our best-laid plans go awry appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
The test, which includes new echocardiography techniques and heart damage blood markers, was an improvement over the frequent HRS algorithm.| Sarcoidosis News
Tailored therapeutics for ocular sarcoidosis should start with glucocorticoids, followed by immunosuppressants and biologics, per a study.| Sarcoidosis News
Columnist Kerry Wong, defending her need for cheese, finds diet, exercise, and socializing choices should consider mental and emotional needs.| Sarcoidosis News
The risk of developing sarcoidosis in adulthood may be associated with microbial exposure in daily life during childhood, a study found.| Sarcoidosis News
The final participant has completed the last visit as part of EFZO-FIT, a Phase 3 clinical trial testing Atyr Pharma’s experimental treatment efzofitimod, in adults with pulmonary sarcoidosis. Top-line results are […] The post Final visit completed in Phase 3 EFZO-FIT clinical trial of efzofitimod appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
The Foundation for Sarcoidosis Research (FSR) has awarded $450,000 to three scientists to support research projects related to sarcoidosis diagnosis, treatment, and care. This funding comes through FSR’s Early Career […] The post FSR awards 3 early career grants to advance sarcoidosis research appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
“When did the pain start?” That’s a fairly straightforward question with an uncomplicated answer for most people: “I fell last Thursday and hurt my knee.” “I was helping a friend […] The post Boiling frog syndrome: Symptoms of sarcoidosis turn up the heat appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
Sinonasal sarcoidosis, when the disease affects the nasal cavity and the surrounding air-filled cavities called the sinuses, mainly affects women and manifests as nasal obstruction, according to a review study. […] The post Women more likely to develop sinonasal sarcoidosis: Review study appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
The Foundation for Sarcoidosis Research (FSR) has launched an enhanced version of its patient registry, FSR-SARC, to help maximize the impact of patient participation in research. “Now in its tenth year, […] The post FSR launches enhanced version of its sarcoidosis patient registry appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
Last week, my husband and I took a road trip to see the Yankees play the Reds in Cincinnati, checking another stadium off our bucket list. We went out for […] The post Finding joy while living with sarcoidosis is imperative appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
A new study from researchers in Turkey suggests that a ratio taking into account the amount of angiotensin-converting enzyme (ACE) and of lymphocytes, a type of white blood cell — […] The post Researchers ID potential biomarker in sarcoidosis for recurrent disease appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
Most people with inflammatory conditions reported overall satisfaction, convenience, and confidence when self-administering Acthar Gel (repository corticotropin injection) through a single-dose, prefilled injector called SelfJect. That’s according to a survey-based […] The post Acthar Gel SelfJect convenient, easy to use: Patient survey appeared first on Sarcoidosis News.| Sarcoidosis News – The Web's Daily Resource for Sarcoidosis News
Researchers analyzed data from the first of three HUNT Study surveys to have data on the prevalence, incidence, and mortality of sarcoidosis.| Sarcoidosis News
The safety and tolerability is being tested of two XTMAB-16 doses against a placebo in patients on a stable corticosteroid dose.| Sarcoidosis News
Sarcoidosis is marked by an over-reactive immune system that begins to attack healthy tissues, creating small clumps of inflammation called granulomas that interfere with and damage any of a number of organs.| Sarcoidosis News
