It Takes a Village… and Ours Showed Up Big Time! The Moebius Syndrome Foundation’s 2025 Conference in Salt Lake City was a huge success, and we would like to thank […]| Moebius Syndrome Foundation
Share Your Story and Help Improve Healthcare for the Moebius Community! Researchers at the University of Wisconsin–Madison are conducting a study to better understand the healthcare experiences of people with […]| Moebius Syndrome Foundation
In Salt Lake City, on July 24, 2025, the Moebius Syndrome Foundation announced the launch of the Moebius Syndrome Foundation Research Registry. The Moebius Syndrome Foundation launched the Moebius Syndrome […]| Moebius Syndrome Foundation
We’re excited to share the results of a 10-year genetics research study, funded in part by the Moebius Syndrome Foundation, that is now published in Genetics in Medicine Open! This […] The post Genetics Study Results appeared first on Moebius Syndrome Foundation.| Moebius Syndrome Foundation
New research, funded by the Moebius Syndrome Foundation, has documented higher probable rates of sleep disorders in people with Moebius syndrome. Study participants held higher rates of REM disturbances, increased […] The post New research on sleep and Moebius syndrome appeared first on Moebius Syndrome Foundation.| Moebius Syndrome Foundation
Join the Moebius Syndrome Foundation’s Community Advisory Committee! The Community Advisory Committee is a new initiative designed to bring more voices into the Moebius Syndrome Foundation, ensuring we stay connected […] The post Join the Moebius Syndrome Foundation’s Community Advisory Committee! appeared first on Moebius Syndrome Foundation.| Moebius Syndrome Foundation
The Moebius Syndrome Foundation is excited to offer scholarships for individuals with Moebius syndrome who are planning to attend college, technical, or trade school in the coming year. We’re awarding […] The post Apply Now for 2025 Educational Scholarships appeared first on Moebius Syndrome Foundation.| Moebius Syndrome Foundation
This summer, join us in beautiful Salt Lake City, UT, from July 24 – 27, for a weekend packed with: ✅ Inspiring speakers and engaging sessions ✅ Social opportunities to […] The post It’s Time To Register for the 2025 MSF Conference! appeared first on Moebius Syndrome Foundation.| Moebius Syndrome Foundation
The Moebius Syndrome Foundation would like to congratulate Austin Halls on fulfilling his term as a Board Director of the Moebius Syndrome Foundation. December 31, 2024 was his last day […] The post 2025 Board of Directors Leadership Announcement appeared first on Moebius Syndrome Foundation.| Moebius Syndrome Foundation
Sponsorships are critical to maintain lower registration rates for the conference! Do you know an organization, company, or individual that may be interested in sponsoring the Moebius Syndrome Foundation 2025 […] The post Join Us as a Conference Sponsor or Exhibitor appeared first on Moebius Syndrome Foundation.| Moebius Syndrome Foundation
Moebius Syndrome Foundation2025 Moebius Syndrome Conference| Moebius Syndrome Foundation