Fragile X–associated tremor/ataxia syndrome is an adult-onset neurodegenerative disorder that progresses at varying rates, usually affecting males over 50 years of age. Females comprise only a small part of the FXTAS population.| National Fragile X Foundation
There are a few general circumstances in which Fragile X testing should be considered: Clinical symptoms or family history of an FX disorder, or unknown cause of autism or other behavioral disability, or infertility.| National Fragile X Foundation
The team of professionals at the Fragile X Clinic at Rush University Medical Center, and their services offered in Fragile X| National Fragile X Foundation
The CHOC Fragile X Program provides comprehensive evaluation and treatment services for children with Fragile X syndrome and associated disorders.| National Fragile X Foundation
The team of professionals at the Fragile X Clinic at Stanford University School of Medicine, and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the Fragile X Clinic at Phoenix Children's Hospital and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the FMR1 and Related Conditions Clinic in Baltimore and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the Fragile X Clinic at Texas Children's Hospital and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the Denver Fragile X Clinic at Children's Hospital Colorado and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the Center for Autism and Neurodevelopmental Disorders (CANDO) and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the South Florida Fragile X Clinic (SFFXC) and their services offered in Fragile X| National Fragile X Foundation
The MIND Institute team conducts extensive research and has a separate Fragile X syndrome treatment clinic that sees non-project patients.| National Fragile X Foundation
Females with Fragile X Syndrome — Webinar| National Fragile X Foundation
Fragile X clinics provide specialized treatment options supported by the latest medical, educational, and research knowledge available.| National Fragile X Foundation
David Hessl, PhD, joined us for a 45-minute webinar where he presented the results of a longitudinal study focusing on executive function changes in people with the FMR1 premutation. The presentation was followed by a moderated Q&A.| National Fragile X Foundation
Opportunities for Families Visit MyFXResearch Portal to search for opportunities specific to you.| National Fragile X Foundation
In June 2024, NIH published RFA-HD-25-002: Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions. If you or someone you know are researching FXS and/or FMR1-associated conditions, this could be a great funding opportunity for you!| National Fragile X Foundation
Dillon Kelley, Advocacy Ambassador to the NFXF Board of Directors shares his experience at the 2024 NFXF Advocacy Day.| National Fragile X Foundation
Meaningful employment is important to parents and self-advocates. Join us as our dynamic panelists share their strategies and successes.| National Fragile X Foundation
