Fragile X–associated tremor/ataxia syndrome is an adult-onset neurodegenerative disorder that progresses at varying rates, usually affecting males over 50 years of age. Females comprise only a small part of the FXTAS population.| National Fragile X Foundation
There are a few general circumstances in which Fragile X testing should be considered: Clinical symptoms or family history of an FX disorder, or unknown cause of autism or other behavioral disability, or infertility.| National Fragile X Foundation
The team of professionals at the Fragile X Clinic at Rush University Medical Center, and their services offered in Fragile X| National Fragile X Foundation
The CHOC Fragile X Program provides comprehensive evaluation and treatment services for children with Fragile X syndrome and associated disorders.| National Fragile X Foundation
The team of professionals at the Fragile X Clinic at Stanford University School of Medicine, and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the Fragile X Clinic at Phoenix Children's Hospital and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the FMR1 and Related Conditions Clinic in Baltimore and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the Fragile X Clinic at Texas Children's Hospital and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the Denver Fragile X Clinic at Children's Hospital Colorado and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the Center for Autism and Neurodevelopmental Disorders (CANDO) and their services offered in Fragile X| National Fragile X Foundation
The team of professionals at the South Florida Fragile X Clinic (SFFXC) and their services offered in Fragile X| National Fragile X Foundation
The MIND Institute team conducts extensive research and has a separate Fragile X syndrome treatment clinic that sees non-project patients.| National Fragile X Foundation
Females with Fragile X Syndrome — Webinar| National Fragile X Foundation
The University of Washington's Neurodevelopmental Language and Learning (NeuDLL) Lab is conducting research addressing how children learn words in stories and the skills that support learning. Participation is remote and can be completed from home. Sessions are scheduled at your convenience.| National Fragile X Foundation
Researchers at the University of South Carolina are studying the experiences of Black and Hispanic mothers who care for children with Fragile X and are looking for participants. The study includes an online survey and an interview about your experiences caring for someone with Fragile X.| National Fragile X Foundation
Now Live: Two FXTAS webinars with the National Ataxia Foundation| National Fragile X Foundation
You Spoke, We Listened: The Completely At Home RECONNECT Clinical Trial –Participate in Research Without the Stress of Traveling| National Fragile X Foundation
This award funds one or more summer students’ research in Fragile X syndrome.| National Fragile X Foundation
FORWARD is a registry and database of Fragile X patient data available to researchers to increase understanding of FXS. The next phase is now open.| National Fragile X Foundation
Fragile X clinics provide specialized treatment options supported by the latest medical, educational, and research knowledge available.| National Fragile X Foundation
David Hessl, PhD, joined us for a 45-minute webinar where he presented the results of a longitudinal study focusing on executive function changes in people with the FMR1 premutation. The presentation was followed by a moderated Q&A.| National Fragile X Foundation
Opportunities for Families Visit MyFXResearch Portal to search for opportunities specific to you.| National Fragile X Foundation
In June 2024, NIH published RFA-HD-25-002: Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions. If you or someone you know are researching FXS and/or FMR1-associated conditions, this could be a great funding opportunity for you!| National Fragile X Foundation
Researchers at the University of Memphis and Cincinnati Children's Hospital Medical Center are conducting a research study exploring the relationship between barriers and the FXS screening process among family members.| National Fragile X Foundation
Researchers at the University of Maryland are looking to understand how children with intellectual disabilities grieve the loss of a loved one. If you are the parent or guardian of a child with an intellectual disability who has experienced the death of someone in their life when they were 5-17 years old, researchers want to talk to you.| National Fragile X Foundation
Dillon Kelley, Advocacy Ambassador to the NFXF Board of Directors shares his experience at the 2024 NFXF Advocacy Day.| National Fragile X Foundation
The University of Kansas BRAIN Lab is conducting a research study to learn about behavioral and brain differences associated with the Fragile X premutation. Males and females ages 50-80 living with the Fragile X premutation, with or without FXTAS, may be eligible to participate. The study includes remote & in-person visits at the University of Kansas.| National Fragile X Foundation
Meaningful employment is important to parents and self-advocates. Join us as our dynamic panelists share their strategies and successes.| National Fragile X Foundation
