I survived Lyme. I remember the fear. You are not alone. | LymeDisease.org
By Jana Steck I am a Lyme warrior, five years into remission, with a calling to help others still in the midst of their battle to feel a little less| LymeDisease.org
This is Part Two of a series on Supportive Oligonucleotide Therapy (SOT), a form of antisense oligonucleotide therapy. SOT is a personalized, gene-silencing treatment designed to disrupt pathogens like Lyme disease. Read Part One here. By Maria Marian, ND, MSE The idea of silencing genes to weaken ... The post Targeting Lyme at the genetic level: SOT’s emerging role appeared first on LymeDisease.org.| LymeDisease.org
By Fred Diamond In this week’s episode of the Love, Hope, Lyme podcast, Athena Brownson, a former professional skier turned Denver real estate agent and Lyme advocate, spoke about her remarkable transformation from a sick person to one who has thrived. Once defined by athletic precision and high-alt... The post How a professional skier bounced back after Lyme disease appeared first on LymeDisease.org.| LymeDisease.org
Patrick Barkham, a respected British journalist and nature writer, has written a deeply personal and powerful piece in The Guardian about his daughter Milly’s long, painful descent into what turned out to be Lyme disease—and the medical system’s failure to recognize what was happening to her. Though... The post “How did we miss it?” A journalist’s search for his daughter’s diagnosis appeared first on LymeDisease.org.| LymeDisease.org
Part One of a two-part series. By Maria Marian, ND, MSE For many people facing chronic infections such as Lyme disease, Epstein–Barr virus (EBV), herpes simplex virus (HSV-1 and HSV-2), or cytomegalovirus (CMV), the journey can be long and frustrating. Antibiotics, antivirals, herbal therapies, and ... The post SOT therapy for Lyme is experimental, expensive—and full of potential. appeared first on LymeDisease.org.| LymeDisease.org
Ten years ago, singer-songwriter Jesse Ruben was desperately ill with Lyme disease—wracked with pain, clouded by brain fog, and battling depression. In the midst of all that, he discovered that if he stayed up well past midnight, the fog would lift somewhat. “So I’d keep myself up till 6, 7, 8 in th... The post Jesse Ruben’s “Monster” tells the story Lyme patients know all too well appeared first on LymeDisease.org.| LymeDisease.org
As alpha-gal syndrome (AGS) continues to rise across the United States, two new continuing medical education (CME) courses—one from the CDC and one from VectorWise CME—are stepping in to address the urgent need for clinician awareness and training. AGS, often called “red-meat allergy,” is a tick-bor... The post Two new CME courses aim to close alpha-gal syndrome knowledge gap appeared first on LymeDisease.org.| LymeDisease.org
By Jana Steck I am a Lyme warrior, five years into remission, with a calling to help others still in the midst of their battle to feel a little less| LymeDisease.org
The human body is made up of many systems, all working together to keep us healthy. If one system falls out of balance, it can disrupt the others, and our| LymeDisease.org
By Fred Diamond Lyme awareness got a major boost recently with the publication of the new National Academies of Sciences, Engineering, and Medicine (NASEM) report “Charting a Path Toward New Treatments for Lyme Infection-Associated Chronic Illnesses.” Lyme survivors, their families, and advocates ha... The post PODCAST: National Academies report opens a new chapter in Lyme research appeared first on LymeDisease.org.| LymeDisease.org
Reprinted by permission of the Rescue substack. By Mary Beth Pfeiffer Magic happened for a far-flung group of scientists, doctors, pop stars, advocates, and a single journalist—me—on Runway 7 at Sony Hall in New York City. We all had been long-time crusaders—in the lab, at the bedside, in a podcast,... The post I walked the fashion runway for Lyme—alongside scientists, stars, and survivors appeared first on LymeDisease.org.| LymeDisease.org
A recent 60 Minutes report highlights a controversial effort to curb Lyme disease by genetically modifying wild mice. Researchers, led by MIT’s Kevin Esvelt, aim to make mice resistant to the bacteria that causes Lyme, potentially disrupting the transmission cycle between ticks and humans. The proje... The post Can genetically engineered mice stop Lyme? And at what cost? appeared first on LymeDisease.org.| LymeDisease.org
West Virginia has become the most recent state to make alpha-gal syndrome (AGS) a reportable condition This means healthcare providers and laboratories across the state are now required to notify the West Virginia Department of Health when they diagnose a case of AGS—a tick-borne illness that can tr... The post West Virginia makes alpha-gal syndrome a reportable condition appeared first on LymeDisease.org.| LymeDisease.org
If you care about improving the lives of Lyme patients and protecting public health, you’ll want to read Mary Beth Pfeiffer’s latest exposé.| LymeDisease.org
The Bay Area Lyme Foundation has announced the launch of Bay Area Lyme Ventures, a new impact fund designed to fast-track promising diagnostics and| LymeDisease.org
from the Center for Lyme Action: Join us for a Virtual Advocate Town Hall on July 28 at 6PM ET. -- Get updates on federal Lyme and tick-borne disease| LymeDisease.org
LymeDisease.org's mission is to prevent Lyme disease, prevent early Lyme disease from becoming chronic and to obtain access to care for patients with chronic Lyme disease.| LymeDisease.org
From the Center for Lyme Action: We’re entering the second half of 2025 with serious momentum—thanks to the incredible support of advocates like you. In| LymeDisease.org
The Air National Guard (ANG) is a unique branch of the U.S. military that serves both state and federal missions. Unfortunately, when responding to| LymeDisease.org
From UCLA, Division of Physical Sciences Despite its presence in over 80 countries, Lyme disease remains one of the least understood illnesses. In the| LymeDisease.org
By Ali Moresco I was 22 years old when my life was completely derailed. Overnight, I went from a driven, high-functioning publicist in the entertainment| LymeDisease.org
By Colonel Nicole Malachowski, USAF (Ret.) I think I may have finally made a difference. All I've ever wanted since my medical discharge from military| LymeDisease.org
By Christine Kilgore, MEDSCAPE Lyme infection-associated chronic illness (IACI) is real, often debilitating and long-lasting, and in urgent need of| LymeDisease.org
The following scientists are icons within the Lyme disease community. Each has made transformative contributions to our understanding of this complex| LymeDisease.org
Ten years ago, then-13-year old Julia Bruzzese was unable to walk, due to complications of Lyme disease. Her family took her to JFK airport, to see Pope| LymeDisease.org
Dr. Richard Horowitz many different factors that can contribute to dementia--including Lyme disease.| LymeDisease.org
California's Board of Pharmacy (BOP) seems poised to block access to a number of compounds used in alternative treatments.| LymeDisease.org
Rhisa Parera delivered the keynote address at a recent workshop on persistent Lyme held the National Academies of Science, Engineering, and Medicine.| LymeDisease.org
