If you want to help improve the lives of people affected by congenital anomalies, including ectodermal dysplasias, become an advocate for the Ensuring| National Foundation for Ectodermal Dysplasias
Register Today! Sponsor Day on Capitol Hill We are thrilled to return to Capitol Hill for an in-person Advocacy Day in 2025 to champion the Ensuring| National Foundation for Ectodermal Dysplasias
We have provided some materials and resources to help you advocate and prepare for meetings with your legislators. Advocating for ELSA? Let everyone know!| National Foundation for Ectodermal Dysplasias
NFED Members Participate in Advocacy Days| National Foundation for Ectodermal Dysplasias
Make Your Story Known For ELSA Dealing with a rare condition like ectodermal dysplasia can be very challenging, especially when it comes to navigating the| National Foundation for Ectodermal Dysplasias
It may seem like the Ensuring Lasting Smiles Act (ELSA) has stalled in the 118th Congress. However, we are taking a different approach. Find out what's happening with this critical legislation and what you can do to help.| National Foundation for Ectodermal Dysplasias
The new 119th United States Congress began on January 3. What does this mean for the Ensuring Lasting Smiles Act (ELSA)? Find out what has shifted, how we're moving forward and what you can do to help us get this important legislation passed.| National Foundation for Ectodermal Dysplasias
How to Use the Advocacy Tool Watch this tutorial video to learn how to fill out the advocacy tool above to contact your members of Congress about| National Foundation for Ectodermal Dysplasias
The air felt electric on September 19th as 172 advocates marched to the steps of the United States Capitol Building in Washington D.C.., ready to advocate for the Ensuring Lasting Smiles Act (ELSA). Read about this amazing day and what's happening next for this important legislation.| National Foundation for Ectodermal Dysplasias
The Ensuring Lasting Smiles Act (ELSA) would require all private insurance group and individual health care plans to cover medically necessary services| National Foundation for Ectodermal Dysplasias