Meet Kristin Matus-Kelso, our new Family and Community Programs Coordinator! With 20 years of personal experience in the ectodermal dysplasia community, Kristin is no stranger to the NFED.| National Foundation for Ectodermal Dysplasias
People often ask, "How many individuals are affected by ectodermal dysplasias?" It’s a challenging question to answer, since they are rare conditions. A team of NFED researchers now has an answer. Read to learn just how prevalent ectodermal dysplasias are and why these numbers are important.| National Foundation for Ectodermal Dysplasias
The National Foundation for Ectodermal Dysplasias (NFED) is thrilled to announce the addition of new leadership experts. Joining our Board of Directors, Patient Care Council, and Scientific Advisory Council, these four exceptional leaders will bring knowledge, experience and insights to advance the foundation's mission of supporting and serving individuals and families affected by ectodermal dysplasias.| National Foundation for Ectodermal Dysplasias
Ally has never let ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome define her life. Thanks in part to the NFED community, music has helped Ally blossom into an inspiring young woman. She's now on track to become a music therapist, where she's sure to help and inspire countless others.| National Foundation for Ectodermal Dysplasias
What causes skin or corneal erosions in AEC or EEC syndrome? The NFED has been collaborating with Dr. Maranke Koster and her research lab to find that answer and ultimately develop new treatments. Read the latest update and what they are learning!| National Foundation for Ectodermal Dysplasias
