Meet Lilly. Lilly is a fun-loving ten-year-old who loves a soak in the bath before bed. Lilly has severe complex needs – and was recently diagnosed with You-Hoover-Fong Syndrome, a rare illness that affects all parts of Lilly's life. Fiona, Lilly's mum, talks to us about the effects on the family of living with You-Hoover-Fong Syndrome.| Chestnut Tree House
Your support helps local children with life-limiting conditions and their families; through the good days, the bad days, and the last days.| Chestnut Tree House
Mum Hayleigh gives us a glimpse into what it's like living with and caring for her daughter who has a rare genetic condition, Coffin-Siris syndrome, and how Chestnut Tree House hospice has supported them.| Chestnut Tree House
Jack’s story: Jack’s Mum, Emma, reminisces about all the fun times Jack and his family had at Chestnut Tree House and explains why they can’t wait to get back.| Chestnut Tree House
